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Fatigue and MS

How would you describe your MS fatigue?

How has it impacted your life?

  1. Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.

    1. , fatigue is definitely a symptom that can throw a real wrench is a person's daily plans. And I think people not familiar with MS have no idea that heavy, chronic fatigue can be a symptom.

      Thank you for sharing about your MS fatigue.

      Best, Erin, Team member.

  2. I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this “fatigue”with regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.

    1. , yes. It is definitely a whole different level of 'tired' and fatigue just doesn't quite cover it. There is a word used in MS communities to describe MS fatigue -- lassitude. But, the general public doesn't seem to know the word very much. Here's a piece on just that topic that I thought you might find interesting -- You're definitely not the only person that thinks we need a better term to describe the level of tired people living with chronic conditions like MS experience.

      Best, Erin, Team member.

  3. Extremely

    1. I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....

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