Fatigue and MS
How would you describe your MS fatigue?
How has it impacted your life?
Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.
normally my fatigue is somewhat manageable with the help of meds but recently I came back from a trip and the jet lag (7 hour difference) combined with the MS had me bedridden for 10 days. It felt like my body was encased in cement! Has this happened to you and what steps do you take when traveling to avoid this double whammy? I have had some days like that. I question if it is MS fatigue or just fatigue from my night owl schedule.
I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this “fatigue”with regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.
Thanks for teaching out. My husband does things like maintenance around the house, shoveling, and mowing the lawn. But as for the inside of the house (dishes, laundry, etc.) its on me. He is older, much older; he had been single for a long time before we got married. His idea of cooking is toasting a PB&J. He doesn`t get it when I tell him I`m exhausted, sore, and sees me struggling to walk. I have a close friend who has offered to help me, but she is dealing with her own personal issues (the recent death of her son, motorcycle accident,17). I don`t want to add to her load.. I am so sorry to hear about your friend's son, that is devastating. Maybe spending a bit more time together will be a good thing for both of you. Jill (Team Member)
Extremely
Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.
I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....
I fully understand your plight. I felt alone with this ms. The major support is from the forum and ms support groups. Friends and family don't get it. It makes us feel like we are aliens and speaking backwards. The only ones that get it is people living with ms. I became disabled 2005, then forced into early retirement 2009. You must know that people see us from their perspective and this disease doesn't look like what feel like on the inside.ttyl we moved from California to Texas to be close to our kids (their idea). Now they are 1 hour away, so we don’t see them as much as we’d hoped. It’s just me n my husband (2dogs & a cat) here. We both work but my job isn’t working with other people, consequently I am here alone! All my friends are out of state. I haven’t been able to really make any friends. You know the kind you can talk to, play cards with, go shopping, watch a movie with. I just do all that by myself.
