Fatigue and MS

cmj oh I am glad you truly shared how you really feel. This modular home I live in which is Florida well like you said it's a pig sty. Guess what for someone who cared about how the house looked decorated around the holidays mowed the lawn cut the bushes painted the house outside there was nothing I did not do. Now I don't want to clean I don't give a crap I have no one to impress. The house is messy. I finally after maybe 8 weeks did the laundry. I washed sheets, blankets, bathroom rugs, and lots of clothes in one day. Yes I kind of felt good that I could keep going like that. The next day my legs or arms were not painful at all Hallelujah!!!! So don't feel bad because my bedroom is atrocious., but again when I get to it. Oh I will but can't say when.

My fatigue was impacting my job. It was all encompassing and people I told thought I needed a nap, or the most infuriating response was that I needed to get to bed earlier. I talked to my neurologist and he prescribed amatadine. It works!

I think in a world where people put way too heavy of a significance on productivity, we have forgotten to have some serious compassion and empathy for ourselves and the rest that we need to get through a day. I think you deserve a huge hug and a high-five. Being a caretaker on top of living with a chronic illness like MS is huge and takes a tremendous amount of mental, emotional, and physical energy. You're a rockstar in my book! Sending much love to you and your Mum this morning. 🧡 Kayleigh, MultipleSclerosis.net team

Yes! Fatigue doesn't even begin to describe this. A few weeks ago, my husband was feeling overwhelmed and uncharacteristically exploded at me, screaming, "I'm sick of this! Sick of all of this!" When I was able to get him to talk to me, he said that he found "four foot long cobwebs" in the dining room. Well, one, I don't see well, and two, when I walk through a room, I'm busy watching my feet so that I don't fall. It was a rough argument.

It wasn't until I got MRI results that showed brain lesions that he's finally starting to understand that I'm not being lazy, that I'm struggling and doing the best I can, but the hardest part of this is that no one who supposedly loves me seems to understand. My daughter called me a hypochondriac. I wish I could trade bodies for just fifteen minutes, so that they could feel what I'm feeling; it's like an 80 mile an hour wind combined with a 5 point earthquake (thanks to tremor)... and add on the flu. I would say I'm tired, but that's just not accurate.

I used to be an athlete, and I used to have a career. Now, I'm coping with legs and arms that don't seem to listen to what I want them to do. Therapy has helped a lot, even with the chronic pain.

Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.

I'm tired all the time and can't work! It consumes me as well ! Ugh!

yes, the fact that many people with MS don't sleep well certainly doesn't make this situation any easier! - Alene, moderator