Fatigue and MS
How would you describe your MS fatigue?
How has it impacted your life?
Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.
I couldn't agree with you more! Despite getting enough rest, eating clean, drinking a ton of water, and not exerting myself, I have no energy to do anything. It is all I can do to get out of bed every day.
normally my fatigue is somewhat manageable with the help of meds but recently I came back from a trip and the jet lag (7 hour difference) combined with the MS had me bedridden for 10 days. It felt like my body was encased in cement! Has this happened to you and what steps do you take when traveling to avoid this double whammy?
I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this “fatigue”with regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.
That sounds really tough, especially when you’re doing all the right things and still things still aren't getting better. MS hits everyone differently, so just try to be patient with yourself. You’re definitely not going through it alone because we get it here and we're right with you 🧡 Be encouraged, Latoya (Team Member) I couldn't agree more!
Extremely
Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.
I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....
unfortunately I too suffer from family members who don’t understand or want to learn about MS. This attitude has changed the way I feel about them. If someone truly cared they will ask, therefore I choose to distance myself from self absorbing people
I fully understand your plight. I felt alone with this ms. The major support is from the forum and ms support groups. Friends and family don't get it. It makes us feel like we are aliens and speaking backwards. The only ones that get it is people living with ms. I became disabled 2005, then forced into early retirement 2009. You must know that people see us from their perspective and this disease doesn't look like what feel like on the inside.ttyl
