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How important is routine to you?

One thing I've noticed over my years of living with MS is that my need for routine has become very important to me. Having the same routine for a week helps me a lot. I know how to properly expend my energy (I know where to use my spoons, as some might say). In my past, I was once a pretty spontaneous person, that seems like SO long ago though.

My reliance on routine has somehow become about more than just properly expending my limited energy, it seems to impact my mental state as well. To the point where, if my routine is interrupted, I get some anxiety and suffer mentally from the change. Even seemingly minor changes can mess with my mind a bit. This is a big reason why the holidays are so tough for me because for a month or so, it feels like my world is turned upside down. People being off when they normally aren't, the TV schedule changing, and plenty of other changes impact me. I know that probably sounds crazy to some but when things aren't how they "normally" are, I struggle mentally and that ends up triggering my symptoms.

How are you with routines? Do you find them comforting? Do you rely on them? What happens to you when things don't go as they normally do?

  1. Hi Devin.. I totally understand how routines can affective you.. for me I have been working consistently since I was diagnosed with MS 5 years ago but have taken an LOA from my job as a nurse case manager. The stress was affecting me in a very negative way.. I was stressed with my daily routine but it was from my occupation and having MS does not help either. I am seeking help from a neuropsychologist which I am grateful for that. I Have been on short term disability and applied for long term which is in process. I know once I find myself I want to find a routine that fits ME and will make me happy again..My career is winding down at 59 years old.. I know the road ahead could be bumpy/ rocky but I will face it head on by day I am trying to manage that...take care and thanks for your support on this site

    1. Hi . It is great to see that you practiced such good selfcare by seeking the help of a neuropsychologist and taking time away from work. That is such a healthy and wise thing to do. I hope you find a career path that is less stressful and allows you to continue working until retirement. Wishing you the best. - Lori (Team Member)

  2. MS or no MS routine is my thing for sure (( : but if it gets messed with i don't get too crazy.

    Devin have you looked at ways to relax? Anything stressing you? You shouldn't let a change bother you so much. Routine is good but change can be good too.

    1. Good advice, . I love how much people in this community support each other. Wishing you the best. - Lori (Team Member)

  3. Hello.......I am 55 and was diagnosed in 2015. At first having routine seemed to help me. However, it eventually stressed me out because I could never seem to accomplish everything scheduled. Now I have no schedule and I do what I can, when I can. I NEVER had anxiety before MS and I am still struggling to accept this new debilitation. In general.....I do feel blessed and whenever I get over whelmed, I try to take a step back and look at the big picture. Not sure if this helps at but I hope the best for you.

    1. Thanks for sharing that !

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