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Hypermobility and MS with or without perimenopause

Good Afternoon!
This question is mainly for my fellow ladies with MS, but men with hypermobility please feel free to chime in.
How do you all manage your hypermobility and MS symptoms as a whole? I'm finding that my hypermobility has become worse with perimenopause and because MS has disrupted my ability to feel pain normally (It takes longer for me to recognize pain) I find myself getting injured doing simple tasks. Most recently I have damaged my rotator cuff while shoveling dirt, something I could have done without issue a decade ago.
It's extremely frustrating to not get a "stop" signal so I'm wondering how other people cope with this.

  1. Ah, the pleasures (?) of perimenopause, eh? It's like the not fun gift that just keeps on giving, !

    That said, while perimenopause can wreak all kinds of havoc, I would make sure something else isn't going on with your body, if you haven't done so already. There are conditions that can cause hypermobility and they sometimes like to tag along with autoimmune conditions like MS, so please keep that in mind. One condition that comes to mind is Ehlers-Danlos syndrome -- https://www.ehlers-danlos.com/what-is-eds/. Please know that I am in no way trying to diagnose you, but hypermobility, especially to the point of injury, can be a sign of something that should bre properly addressed. That, coupled with a probably very high pain threshold, is making you more susceptible to injuries and that's no fun.

    If you haven't done so already, I would definitely talk to your doctor about this and don't let them brush you off with answers like, "well, this is probably your MS" or "this can happen with perimenopause". Just because these things *can* happen, doesn't mean they *should*. And it also doesn't mean you need to just "learn to live with it" either.

    Best, Erin, Team Member.


    1. Oh yes, I am very familiar with EDS. As a massage therapist it's one of my specialities.
      The most recent ortho I saw said I probably don't have EDS because I can't bend my thumb to my wrist 🙄Last time I checked EDS has different levels of hypermobility! ! There are plenty of other things I can do with my 5'10/270lb body that someone my size shouldn't be capable of but apparently it's because I "carry my weight so well".
      Or it's because no one has done genetic testing for EDS 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️
      And yeah...Peri is joyous rapture 🤣🤣🥵🥵

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