Late Onset MS
I would love to connect with anyone who has received a diagnosis after 60. I’m 67.
I’m 63 and waiting to see my gp. Was diagnosed with Menieres but now experiencing other symptoms… bladder and bowel incontinence, rashes, feeling of crawling in scalp and on my face, warm water legs?
First, thank you for bringing this thread back to life from last year! It’s really helpful to hear from others who are going through similar experiences, and your update adds a lot to the conversation. Good to hear you’re seeing your GP soon. Make sure to tell them about all these new symptoms so they can help you figure things out. Until then, hang in there, and feel free to reach out anytime if you want to chat about what you’re going through! All the best, Latoya (Team Member)
I'm 70 and was diagnosed at 66. The neurologist told me it was spms. I had been having symptoms for a few years and was finally able to put a face on it. From what she could figure out, I had symptoms of rrms in my 40s, but thought it was pinched nerves. I went into remission for over 20 years until it flared starting with Trigeminal Neuralgia, then leg weakness, spasms and cognitive issues. I'm on a DMT so there are no new lesions, but it is progressing.
No I'm on Kesimpta I was dismissed by several Drs in my late 60's just before and during Covid as to my concern with having MS. I have done many years already studying about this and other autoimmune diseases trying to get answers. Now my Rheumatologist has the diagnosis of UCTD for me, but it's still a waiting game. I think I should seek out another Neurologist who has progressive ideas?
I was diagnosed at age 59. I had only had symptoms for about a year before my diagnosis. I am now 75 and just started using a cane for balance. I was on Copaxone for about 10 years and then switched to Abagio because I was tired of the injections.
It’s impressive how you managed your symptoms for so long before needing a cane! How has the switch to Abagio been so far? -Latoya (Team Member)
I had MS since I was 20 but only diagnosed and had my worse symptoms hitting Menopause at 55. Mostly I feel grateful that I had so many years without major symptoms. Biggest problem now is trying to separate MS from old age ailments so I get the correct treatment. Is it MS or arthritis or a slipped disk or diabetes or high blood pressure etc
It’s amazing that you've had so many years without major symptoms, but I get how frustrating it must be now trying to figure out what’s MS and what’s just aging. The overlapping in some conditions and symptoms is overwhelming to understand at the very least. You’re definitely not alone in that! -Latoya (Team Member)
