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Long journey of symptoms

I have written before about a range of symptoms I have had, particularly back in about this time 2020 where the symptoms were crazily intense but I was generally treated as though I was a hypochondriac and that it was just anxiety, or that it was probably epilepsy related. My feeling was that there was something seriously wrong. I took it seriously when I was getting electric shock sensations in my tongue.

Fast forward to now and some of this symptoms that had disappeared are back. Some never went away completely but were less intense or as frequent (spasms, joint pain, some tingling, electric shocks in tongue, brain fog and fatigue). Now tingling randomly spots my face, sharp pin prick sensation, way more electric sensations, tingling has been persistent in my right leg in my hip and thigh and foot and my calf sometiems feels like it has a rubber band around it; tingling in my hands and sharp pains in my hands. My eyes feel different like my vision isn't as good (I do wear glasses and have astigmatism) and it feels like they wander about sometimes. I get pain around the eyeball. I had a few weeks of persistent muscle tightness in my body...I'd wake with painful stiffness. Ive had moments where I have felt I suppose dizzy like I was falling. I have had some itchiness, twitches, and as I posted the other vulva/anal itching and burning which is so awful. I am tired all the time.

Previous MRI came back normal. Thiugh the recent one my new Neuro didn't have the spine done. I havent had a lumbar puncture or evoked potentials.

Luckily I have an appt with my Neuro scheduled for next week....as last time when it was really intense I wasn't able to see anyone til the end of the year.

I know there could be all sorts of possible reasons for all these symptoms and I have only ever wanted answers...but never really been taken seriously. Hopefully this time will be different!

  1. I hope you get some answers this time around, . If not, you might want to see an MS specialist. It might not be MS, but something is going on and you deserve treatment. Some people do seem to get the whole range of MS symptoms before lesions show up on MRIs. You might be one of those people. Keep us posted if you feel comfortable doing so. Thinking of you and wishing you the best. - Lori (Team Member)

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