June 24, 2017
Has anyone else, past or present, been diagnosed with kidney cancer? Also- I have never typed in a forum. I apologize if I'm doing it wrong. lol
Erin Rush Admin
July 2, 2017
HI TXMonSter and Welcome! I am glad you found us. And don't worry; you did just fine writing in this forum. I do not know if any of our members have/had kidney cancer, but I do know that at least a few have dealt with other types of cancer. If you are dealing with kidney cancer, I wish you the best of luck with your chosen treatment plan. If you have any further questions, please don't hesitate to reach out. We are happy to help in any way we can! Best, Erin, MultipleSclerosis.net Team Member.
July 3, 2017
Hi, there- I have to admit, I felt kind of silly joining a website- I am the worst, when it comes to technology. lol- After reading a couple of articles, in random searches for information, I thought- these might be my People! 😀 So, like I said- I am new to this site, new to social media. I am 30 years old, I have MS (w/ Tysabri infusions every 28 days) and was recently diagnosed with kidney cancer. My immune system is extremely weak, and I have been ill quite a bit. I am married, with two young kiddos. I know no one who is dealing with MS, much less MS and kidney cancer- especially at my age... and I am finding it to be very isolating, at times. I will be having kidney surgery and know there is going to be a very long road ahead for me (both physically and mentally)- so I am more or less trying to build my support system as best I can. I would greatly appreciate any guidance, friendship or support from anywhere! lol-- Thank you so much.
January 11, 2019
My husband has MS and was recently diagnosed w kidney cancer. I would love to hear more about your journey. We are finding that treatment options are limited.
Meagan Heidelberg Moderator
July 7, 2017
Well we are very glad that you joined our community. We truly appreciate it. We actually have a few people on our team who write as well as moderate who are 25 and 28 years old. You can see a little background on them here; https://multiplesclerosis.net/community/experts/.
We want you to know you're never alone and ALWAYS welcome here. A website that could be beneficial in finding local support groups is at the National MS Society; http://www.nationalmssociety.org/Resources-Support/Find-Support.
We wish you the absolute best of luck with your surgery, keep us updated!
Best - Meagan, MultipleSclerosis.net Team Member
July 31, 2017
Wow when I saw the post, I had to respond. I wa dx with kidney cancer last year. Has my ry kidney removed. No other treatment needed as it was localized.
January 12, 2019
Hi, Rosemary! I apologize for the lack of response. I am not sure if I saw your original post, but I'm seeing it now! I hope you are doing so much better. 😀 Many blessings and sending you good energy, from Texas!
January 12, 2019
Hi, mandilu126! I am so glad you reached out. There isn't much out there for both MS and Kidney Cancer, huh?? I have not logged in, recently, and really didn't know how this posting worked the first go-around! Is there a way to PM?
January 12, 2019
I really appreciate your reply!
If you’d like to email me, my email is: firstname.lastname@example.org.
I would love to hear more. The doctors seem stumped...and it just seems like there should be more available than what we’ve been told.
Thank you so much!!