MS Primary Progressive

@dede74 Thank you for sharing with us...it sounds like you have had a lot to process and think about. How are you feeling today? Please know we're here for you. Sending hugs -Beth (Team Member)

Thank you for your support Lori, I truly appreciate it. I live a good life with my family, friends, and especially my two fur babies. Getting that news was hard to hear, because of the progression of my disease seems like it is moving along a little bit too fast. I understand about the disease modifying therapies, Myself and my sister are on Orcevus have been for almost 4 years I believe, I have had MS for 13 years and my sister for 20 years. It is hard to think about my Aunt Margy in the past go from a cane, to wheelchair, and the bedridden, like I mentioned it was years ago so there were no new medications to help slow the progression. I am just shocked at how quickly my body and mind are trying to quit on me, but I cannot let that happen and I won't. I wake up every morning no matter what and say today will be a good day, then I turn on Ice Cube! I absolutely love this site, because I am able to talk about MS and everyone understands what I talking about. Thank you and hope you enjoy the Holidays, I am ready for this year to end. Have a wonderful day!!

Thank you so very much 💗 you just made my day, honestly!! I believe we all find so much inspiration in ourselves, especially on this blog. I've noticed I'll be going through new symptom or just having really rough day, when I feel like my mind is just not at all right, or if I able to make it back up my stairs after letting my dogs out. Then "poof" outta of nowhere there is an article that means so much to me, thinking 🤔 I'm the only one, it is comforting to know I'm not alone. I haven't been alone since my diagnosis, my older sister already had MS for at least 10 years, and I also before I knew what MS was, my Aunt Margy suffered so badly. She had it in early 80's until the 90's when doctors were baffled with MS and kinda like they still are. Yes indeed the scientist and doctors have made leaps and bounds with this "Beast". I'm baffled by the cost of the therapy myself and my sister are on holy crap $138,000.00 for 2 infusions a year!! Thankfully the company helps patients with costs, and I am retired from Coast Guard so I have Tricare for life. Sorry, I tend to babble quite a bit, loose track of what I was doing, time, etc. I believe you too are an inspiration, because you reached out to me just to lete know what you were thinking. That I would say is ever quite amazing, as I am sure you are!! Have wonderful day, so busy down here with Mardi Gras and avoiding getting 😷, plus moving this summer my youngest son will be joining the Marines! As my oldest son will stay down here to continue to work on Video Game Programming degree, I realized today just how proud I was of them, but also of myself and husband.

Stay strong mate. There is hope and you'll find plenty of support here.