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MS tops this lot.

Hi my first time , I was diagnosed with ms in 2016. Where do I start?

I always think people won’t believe me as I have so many things going on and then ms tops the bill. I have CKD, PBC, use catheters as I can’t pee, underactive thyroid, have had six knee implants, and breast cancer. At the moment I am waiting to go to the hospital to remove four to six inches of my bowel, and have a pouch in my throat that fills with food then I choke trying to get it down. I think that covers my story. So being told I have ms just about tops this lot.

  1. Hi ! First, I would like to welcome you to the community. I am so glad you found us, especially with everything you are going through. Please feel free to reach out with private messages to me or to any of our moderators if ever you need help finding anything. I hope your surgery goes well and that it brings you some relief, You must get awfully overwhelmed at times, dealing with so many health conditions. You will have no issues with people believing you in this community. It seems that one autoimmune condition opens the door to others. We have lots of members who, like you, are dealing with several diagnosis at once. It must have been quite a shock when you learned you have MS. Are your doctors working well together to devise treatment plans? Are you on medication for your MS? If so, do you feel it is helping? Please know we are here for you whenever you need support or a place to vent. Keep us posted about your surgery if you feel comfortable doing so. Thinking of you. - Lori (Team Member)

    1. Hi Lori thank you so much just to know someone has listened to you makes a difference and not yes well ok and forgets all about you , my doctors have always been brilliant but over the last twelve months it’s been impossible to get anywhere, I don’t know if it’s someone new or not but every single month after I have ordered my prescription something is missing and I’m told I don’t need it anymore this is antidepressants and painkillers , I get them in the end but it’s phone chemist then phone doctors the phone chemist again, also I spoke to a new doctor over the phone because of my itching (MS) she told me I had scabies and sent me some cream, that really hurt me that she thought that I was so embarrassed,

    2. How frustrating, . It can be dangerous to suddenly stop taking certain antidepressants. The doctor and pharmacist should know that. Painkillers and antidepressants are not the kind of medications you should have to fight for. What sort of doctor did you speak to about your itching? A neurologist should know that itching an MS go hand-in-hand. I am so sorry you had to deal with that. Here is an article about MS itching that you might want to share with that doctor: https://multiplesclerosis.net/living-with-ms/crazy-itch-just-cant-satisfy. It sounds like you are really going to have to advocate for yourself with this particular practice. Sending lots of virtual hugs your way. - Lori (Team Member)

    1. thank you Lori, just speaking to someone who knows what your talking about means a lot

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