MS ugly cousin NMO
In 2019 I was diagnosed with MS brain and spine lesion. They say I have had this since 32 and now 59.Been in the hospital twice from heat and now losing right side if body. Now MS ugly cousin looks like MS but the lesion are long gate but they had medication for it, however I still have MS. My vision is impaired but my eyesight is good the nerves from my eye to the brain I'd not well. They found MNO three years ago that hoe they were able to help. In the hospital they took my antibodies and put clean blood along with steroids to trick the MS and MNO for 5 days. The medication I will be on is like twice a week the first month and thereafter once a month. The shot is like a diabetes shot and I can do it myself. Cuts down my visit time and allows me to have a somewhat normal life until the next MRI.
, I am sorry you are dealing with NMO and MS! Talk about a double whammy! I hope the medication you will be taking works well and brings you some noticeable relief!
Best, Erin, MultipleSclerosis.net Team Member.RushI
I second Erin! I'm so sorry you are managing both NMO and MS. My heart is going out to you Tiffany. I wanted to let you know that we also have an NMO sister community that is full of some of the nicest people around. They can be found here: https://neuromyelitis-optica.net/. I hope you know you have all of our support here and if you ever need a place to vent, need information, or just need some love and support, we'll be here for you! 🧡 Kayleigh, MultipleSclerosis.net team
