Muscle weakness
Hello,
I am trying to figure out what is going on with me. Over the past year or so I have begun experiencing multiple symptoms and have gained different diagnosis from doctors that are pretty much fall back diagnosis (they don’t know what’s wrong and can’t prove it to be it or not so just put me in as having this) from bppv to my mensus causing my symptoms.
The first diagnosis was BPPV for dizziness,balance and visual disturbances.
The second was vitamin and iron deficiency but when I went to a hematologists she said I wasn’t deficient.
Went to a gi to see if my stomach pain was causing it and he said it was my mensis causing it ( I’m on bc and it’s very light)
My symptoms are balance, occasional blurred vision, weighted legs, extreme fatigue, crawling sensation when I’m trying to relax, sharp pain behind my left eye that comes and goes, feeling of my bones vibrating on real bad days, my eyes twitch for days on end, I get brain fog frequently, I wake up pale with my hands and feet swollen to the point I have to remove my wedding ring before bed. And a lesion on my liver and gallbladder.
Iv had three ct scans of my abdomin and an ultrasound of my liver, colonoscopy and egt.
Thanks for any help
I can't say what's going on with you (no one here is a doctor, and no one on this sub can give medical advice--it is also against forum rules, since we're not qualified doctors lol), but I can say what I personally went through that ended in an MS diagnosis.
Before I do that, I should first say that many things can look like MS and not be, MS has MANY mimics.
My first symptom was profound intractable constant spinning vertigo, usually BVVP vertigo (they told me, which they first thought I had) is episodic and provoked by head turns. BVVP vertigo is also easily treated by an ENT or PT who knows how to do the maneuvers to move the calcium crystal out of the affected ear canal. And they said it could be righted usually in 1-2 treatments. These were ineffective for me, as were anti-nausea meds used for BVVP, and most other nausea meds of increasing strength even ones for head injury. Later in the same attack I developed numb, spongy feet, then my brain thought my right knee had disappeared lol and my legs lost all sense of position in relation to my body, and I couldn't tell where they were unless I looked at them.
I could not get a GP/PCP to refer me to a neurologist, since 93% of all vertigo is related to the ears (I have a research link for that as citation somewhere, but this forum doesn't allow for post editing, it doesn't save posts drafts, and tablets refresh tabs after a few mins so I didn't want to lose what I've typed so far). I finally figured out, that the only way I could could rule out the ears with the intractable continuous vertigo that never went away was to visit an ENT whose job it was to determine if the vertigo was ear related. It wasn't. He sent me for MRI (free in public healthcare but takes a while) so I asked him for referral to private-pay MRI instead. Best $900 I ever spent. I got my scan a week later and had an MS diagnosis within the month because I had multiple brain lesions in areas specific to MS, and they did all the tests needed to rule out the mimics once they saw the lesions. In the vast vast majority of people, vertigo is not brain related though, it could absolutely have been BVVP. Only a qualified specialist in the related area could have determined that for you. Folks getting the runaround or that can't get a referral to a neuro, can get a private pay MRI though, sometimes that takes GP/PCP referral.
I didn’t develop full-blown signs more classic to MS (like Optic Neuritis--ON) until after I had already gotten diagnosed thanks to the MRI. Seeing an optometrist and then opthalmologist was helpful for that, because they could spot paleness in parts of the back of the eye that can sometimes be seen in cases that have a stronger link to MS like ON.
Best of luck to you, I hope your doctors figure this out! 🍀🤞Keep self-advocating
