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Neurogenic bladder help!

Hi everyone! Male, looking for some advice on my bladder issues. I've been diagnosed 14 years ago and the last few years my bladder issues have been getting worse. I was on Tadalafil, Alfuzosin and Sildosin. I'm retaining 600CCs before I go and my urologist suggested intermittent catheterization. I've been doing that 4x a day for the last two weeks and frankly it stinks. I like that I could be fully empty and not have to worry about bathrooms constantly but I always have soreness, UTIs is a concern (trying to be as clean as possible and use BZK wipes every time) and last night I had brown urine and clots for some reason which luckily cleared up this morning (I did check in with the doctor about it). I've sampled about 10 different catheter types and are using the two of the least irritating pre-lubricated ones. Just wanted to know if there were any tips and tricks from the more experienced or even any other medications I should ask my urologist about? He claims there is none stronger than Sildosin and would discuss Botox later on (which doesn't sound that wonderful either). I would appreciate any help!

  1. Hi . I am going to tag two of our advocates in this post in hopes that at least one will get back to you: and . Hopefully, they can help. In the meantime, here is a recent article from Mike that might interest you: https://multiplesclerosis.net/living-with-ms/bladder-problems-urologist. I hope you get lots of input and come up with a solution that works for you. Best wishes. - Lori (Team Member)

    1. Hi eigin

      Sorry to hear you’re dealing with this issue as well and it adds another thing we need plan for while out and about or traveling. Sounds like you’re doing all that you can and frankly I haven't tried any of the meds you spoke about.

      There are electrical devices out there to help and a few more in trials to help with the function of your bladder. I am giving these some thought and just might try one. Please keep me posted which direction you go with and your results.

      Thanks for reading, sharing your story with us

      Mike Russell
      Author and Moderator

      1. Thank you for the link. While the condition there doesn't apply to me directly, the comments were good to read.

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