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Please help! Could this be MS?

Hi there! I am new here! I am a 21 year old female who has been having kind of weird symptoms since April 14th(just two weeks after my 21st birthday 😢 ). Firstly, I wan't to apologize about how long this post is and I am sure there are other people who have posted these questions before, but I just really need some advice. So, It started with headaches that triggered migraines that made me go partially blind in my left eye(my doctor diagnosed me with Ophthalmic Migraines). I had never had migraines before, so my doctor was concerned and I had an MRI done. Apparently it came back fine? I am not really sure because it took 2 weeks for anyone to call me about it, and all I was told was that I didn't have a brain tumor lol... Anyway, a few weeks later I woke up and the left side of my body was numb. I didn't think much of it; I just thought maybe I slept wrong or something. While at work a coworker of mine told me that she suspected I had MS, but I didn't really know what it was so I just brushed it off. Eventually, I saw an ENT doctor and he said everything was fine. But I was still getting new symptoms like everyday it seemed like. It mostly started with cognitive issues; like memory loss, concentration, etc.. Typical brain fog symptoms. I brushed them off as migraine symptoms and my doctor scheduled me for blood work. They took 8 vials of blood and tested EVERYTHING. I am talking everything from a normal CBC to like my B12 and Lyme Disease. Everything came back normal, except all of my white blood cells were low. No one seemed concerned however, so I let it go. But I was still getting weird symptoms. I now started experiencing physical symptoms at this point. And this is where I started to question whether or not I had MS or it was just stress. So, for example one night I was getting ready for bed after work and out of nowhere I started getting like this tingly feeling across my chest. It started in like my under arm area and then wrapped around the front of my chest. I didn't have any pain or tightness, and it was rather short. But it was weird. Later that night I had that same feeling on the center of my upper lip. Again it only lasted a few moments and then disappeared, but it was weird. Every once in awhile I will go through like a period where my legs/arms are constantly falling asleep and/or tingling. One night at like 3AM I woke up and realized the center of my right hand was tingling, again weird. I also woke up one morning a few weeks ago and I went to grab my phone next to me with my left hand and it literally felt like there was lead in my arm; it was SO heavy it just fell back down on my bed. I have also noticed that it is very difficult to walk in a straight line, I always have to pay attention to how I am walking or standing or else I am stumbling all over the place and falling down. I have never been a very balanced person, but I at least could walk in a straight line. It’s like I’m telling myself something and my body is doing something completely different? Anyway, so back in July I ended up seeing a Neurologist. My first appointment went pretty smooth. He told me that my eyes were “unusually dilated” and “weren’t really reacting to light”, but didn’t go on to explain what that meant, idk if it is relevant or not? He told me he was going to review my MRI again because he couldn’t believe it came back clear. Again, I heard nothing back. So, maybe it is okay after all? My next appointment he acted like we never met though, so?? But I have no idea(that’s why I am here haha). I had this MRI done in May though. Fast forward to like the end or July/early August. I woke up one morning and I felt like I had been hit my a freight train. I was physically drained, and my body was burning in pain. I could barely move it hurt so bad. My lower back hurt so bad it took me forever to sit up. This lasted for about 2 weeks and slowly went away. I still had a lot of the fatigue though. My last neurologist appointment I explained to him that I had also been experiencing this really intense burning pain in my left cheek bone and my jaw. This pain was excruciating! I ended up taking some of my emergency pain meds that I had never taken before to try and dull some of the pain. He basically explained that it appeared like I had Trigeminal Neuralgia(?) but it could just be caused by a viral infection… and then proceeded to ask me if I have herpes lol. So, basically I have gotten no answers and I am going to Disney World for 14 days in December and I am terrified. I walked to and from work yesterday(It only takes about 15-20 minutes to walk there) and I kept waking up in the middle of the night in excruciating pain in my entire body. I could barely walk this morning. I have been having the body pain for about 3 weeks straight now. Some days it’s a bit better, but other days it is debilitating. I also experience dizziness and lightheadedness. It gets worse in heat. My symptoms get 100x worse in heat. I don’t know about cold yet though.
Thank you so much to anyone that actually reads all of this(haha), I know it is EXTREMELY long and I am very sorry about that! I just really could use some advice, that’s all. Thank you again!

  1. how are you doing now ?

    1. Hi , I am so sorry we somehow missed your post and are just now responding! I can't even imagine how frustrating it must be to experience so many symptoms and go through so many different tests and still not have a clear diagnosis. Unfortunately, many people here have also had similar experiences, as MS can be difficult diagnosis. One of our advocates explains why in this article here: How was your trip to Disneyland, and how have you been feeling lately?

      Wishing you and yours a very happy New Year! - Shelby, Team Member

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