Was just perusing many of the threads on the forums and didn’t see any specific topics that related to my diagnosis. I was officially diagnosed last week, so all of this is totally new to me. I am different in the sense that I am almost asymptomatic based on what I have been reading of other people’s experience with the disease. So I was looking for anyone else out there that was in a similar situation to mine.
It all started back in March, had numbness in my ring and pinky finger that travelled into the palm of my hand. A week or so later, my forearm also became numb. This was followed by mild burning and tingling in the same area. Few weeks later burning and tingling stopped and I was left with numbness in fingers, hand, and forearm.
Assuming it was a compressed nerve, I had an EMG and NCT study. They found I had ulnar nerve compression in my elbow, Cubital Tunnel. I then had a ulnar nerve release surgery in my elbow. After recovery, my forearm regained feeling and is no longer numb, but my hand and fingers were still numb.
Further exploration was required, so I had a c-spine MRI. MRI returned with a lesion on my c-spine as noted by the radiologist. Orthopedic surgeon advised me to seek further diagnosis from neurologist. Went and had a non-contrast/contrast MRI of brain, c-spine, t-spine, and l-spine. Numerous lesions noted on brain and lesions on spine were confirmed. The lovely LP was next, results returned with o-bands and high RBC and WBC counts in CSF. Shortly thereafter I was diagnosed with MS. Neurologist rx’d Tecfidera for my DMT.
I am currently awaiting results of MRI on hand/arm as well as U/S guided injection on my ulnar nerve in my hand to confirm or negate Guyon’s Canal syndrome. If it is negative, I will assume that the numbness in my hand is due to the transverse myelitis caused by the MS.
Other than the numbness in my hand/arm, I am asymptomatic for the other symptoms of MS. Because I have such limited symptoms, I was looking for someone who had the same experience/situation that I am in with such limited symptoms. I actually feel horrible writing this after I have read what many people are experiencing with MS, I feel like my situation is very trivial in the grand scheme of things and that I should be happy that my symptoms are so minimal.
I was just looking for someone who is/was in my situation where diagnosis was almost accidental and symptoms were very minimal. I honestly do not know what I expect from this post, I know there is no “common disease progression” that anyone can give me. Regardless, I am just looking for any insight of advise as I am just starting to process my diagnosis.
Appreciate any information!