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How to Build a Self-management Toolbox to Live Better with MS

Anyone living with MS would benefit from having a self-management toolbox of strategies, coping skills & support options in place to help troubleshoot potential problems. I wrote an article sharing key elements of ideas for things you can do to reduce the risk of symptoms that in my opinion, should be a part of a symptom management plan given out to us when we are diagnosed so we know what we can do to help ourselves. There are also bullet points of important things to discuss and clarify with your doctor. If interested, my blog link is in my bio. Meanwhile, I'd love to know what's in your self-management toolbox? I love to learn new strategies🧡💜

  1. , thanks for sharing this! I found your article thoughtful, thorough, and definitely helpful! I like how you bring up mental health and your list of other things to consider (long term planning, family planning, etc). Those types of things can often get overlooked when someone is newly diagnosed or dealing with the physical issues of MS. I hope some of our community members chime in here and share some of the tools in their toolbox! Best, Erin, MultipleSclerosis.net Team Member.

    1. Thank you for letting me know that you liked the article! The subject is a topic close to my heart. Although there is a lot of information about how to manage daily living with MS now, (thanks to forums like this one!) I think there is room for improvement on the care team level, as far as more structured support at the time of diagnosis and at different stages of MS. There is so much out there to support people with MS but a lot of people don't know about it, or where to find it. I never even thought of looking ahead to plan my future- I was afraid of what that might look like! After almost 20 years of living with MS, blowing off my anxiety as a weakness, I realized that I'm probably not alone in ignoring my mental health or taking steps to make sure I have systems in place for my future with MS. I'm trying to shine a light on the fact that people with MS need more support with acceptance, adaption, and coping, as well as long-term planning. Thanks for helping me do that!

      1. Not sure if it is just the mobile view of this site, but I see nothing but an "about" section that just has: Member Since 2017, and an activity section, which just appears to be replies to stuff or forum topics. I can't see a link to your blog.

        1. Hi there, you're right. We don't currently have a bio or about section for our members yet. I apologize for any confusion. Their blog is www.mswellnessproject.com. I hope that helps.

        2. Sorry! I didn't realize that! Thanks for sharing my blog link!

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