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So frustrating.

I merely want to understand what this is in the Pons, that one optometrist appt, escalated into many doc appts, a lot of vagueness, and could or could not be related to what anything that caused me to nerd an MRI. It's all been out of pocket expensive, and nothing said, but what the radiology report said. I really don't want to waste anymore resources. I don't want a diagnosis. Just want someone to say whether or not this is going to continue to cause me what i experience.

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  1. I merely want to understand what this is in the Pons, that one optometrist appt, escalated into many doc appts, a lot of vagueness, and could or could not be related to what anything that caused me to need anMRI. It’s all been out of pocket expensive, and nothing said, but what the radiology report said. I really don’t want to waste every into this anymore…

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    1. Hi amywill79! I am sorry you have been unable to get a definitive diagnosis yet. I am unable to offer any medical insight in regards to your scans. You mention a number of appointments, so I don't know just what kind of testing you have gone through already. However, physicians use more than one diagnostic tool to reach a diagnosis of MS. You can read about them here and see what tests you have already had done -- https://multiplesclerosis.net/diagnosis/tools-your-doctor-will-use-to-make-a-diagnosis/. Also, there are some conditions that "mimic" various MS symptoms -- https://multiplesclerosis.net/diagnosis/ruling-out-other-health-conditions/. It's important to have those conditions ruled out.

      I don't blame you for being frustrated, amywill79. Although it can be exhausting, don't quit advocating for yourself and your health. Keep pushing those doctors for answers. No one knows your body like you do and you know that something is wrong. Keep fighting. I know it's hard, but keep fighting for answers.

      Best, Erin, MultipleSclerosis.net Team Member.

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