So many confirmed MRIs for MS
Hopeless is back again! It makes me sad to read all the stories and comments about people who have MS And what they’re going through! It makes me equally as sad, for all the people who have all the symptoms of MS and are suffering also but have no diagnosis!
I am still searching for answers. My story goes back years to 2003 when I had a numb chin and then it got crazier from then on and here I am in 2024 with no Doctor & 2 unread MRI’s… once again, both of these MRI’s Confirm MS!!! My doctor retired on November 30, 2023. She had the results refused to go any further with them because she had retired so I’m still sitting here in bed or in Wheelchair still on disability getting worse and no Doctors in sight Taking on new patient!
I just don’t know how it can be possible for someone to be on disability can’t walk more than a couple of feet can’t climb stairs can’t get up from a squatting position. Can’t bend over without falling out flat on my face can’t carry on a conversation. can’t remember what I did this morning… The list goes on and on! I truly hope no one else goes through what I’ve gone through because it is the most disheartening, hopeless sad feeling to live with every day not to mention the chronic pain and the stereotyping that goes with narcotics to make my pain somewhat better! I went to the hospital back in February of this year, and the doctors were so nice to be there until they found out that I was taking narcotic for chronic pain From the failed box surgery! I’ve taken them for years and need to keep taking at least until I have The Fracture in my L3 repaired and my C-spine herniated disc’s & Severe stenosis and pinched nerves. I also was diagnosed with having microangiopathy And Sclerosis throughout my body, And if that’s not enough I have TIA’s on a regular basis!
Because of all these things, that’s why I’ve named myself hopeless! I would love to hear what all you think About my situation and maybe you might have a path I could go down to find some help!
I live in Muskoka Ontario, so I’m quite a distance away from all the top-notch doctors in the cities. Thank you for listening. I wish all of you well.
Hey,
!
It's good to see you posting again, but I am so sorry your situation hasn't improved. That really stinks.
I wish I had some brilliant suggestions for you, but it sounds like you are doing everything you can already. Living where you do, it might require an enormous amount of time and resources to go to another specialist to get treatment. But, it may come to that. I know wait times to get seen by a specialist in Canada can be pretty long, so have you tried to get a referral in place, even if an appointment slot is months away. (As an aside, I am not denigrating the healthcare model of Canada at all. I'm in the US and boy, have we got our own healthcare problems!)
I am glad you are some pain meds that offer you a measure of relief and I am sorry you are being judged by some medical professionals for needing them. That's really unfortunate and unfair to you.
It's none of my business, but I do hope you are able to get surgery to repair your spinal issues, which, hopefully, would offer you some relief from the pain you are in.
You shouldn't be forced to advocate so much for your own health, but it may continue to be your best path forward. I have no doubt you have been trying for years to get answers and offering a statement like "just keep going!" may seem pretty insulting and unhelpful, but, frankly, that's the best answer I have.
Please know you are not alone here and we're here for you as you seek answers.
Best, Erin, Team Member.
