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Looking for help, at a standstill

Fable

Hello everyone,

I’ve read so many good things about this community and how they are so willing to help and truly care.

Let me attempt to make this short as possible. I’ve been going to various doctors for a little over a year now and none of them have even tried to clarify what is going on with me. I’ve been to a neurologist, pulmonologist, and my general doctor. Here are the tests and results done:

MRI with contrast - Multiple small T2 Hyperintensities found, along with basement dystrophy in eyes. Doctors said abnormalities but nothing to be concerned over.

Office EEG and home 72 Hour EEG - Many sleep arousals, heart irregularities and focal slowing. Sleep deprivation. Again, they said abnormalities but nothing else.

48 hour sleep study - Heart palpitations and irregularities. Also more sleep arousals.

I have had multiple labs done with abnormalities, but they were not concerned. I’m on Keppra, a beta blocker and Cymbalta for nerve pain already. I’ll list below symptoms.

Nocturnal seizures (treated with Keppra)
Feet and hand tingling
Feet and hand numbness (extremities go to sleep so easily, especially in bed)
Sharp shooting pains in joints, knees back and hips are the big ones
Feels like my ankles itch internally all the time
Constipation (prescribed medicine makes it worse)
Bladder retention issues
Mysterious consistent pain below my right rib cage that no doctor has been able to tell me what it is
Chest pain (feels like someone is picking me up and squeezing right at the breastbone)
Palpitations
Strange vibrating sensations
Feelings of things on me, but they aren’t
Extremely sensitive to touch
Heat does me in, especially makes the nocturnal seizures worse.. but then I’ll freeze. My hands and feet are almost always cold
I have floaters and flashes that haunt my eyes 24/7
Migraines
Tinnitus
Blood pressure fluctuations (POTS)
Cognitive issues (Brain fog, forgetfulness, inability to just think clearly at times)
Fatigue that makes it hard to put one foot in front of the other on days

I could add more, but I know you all experience a lot of the same daily. I’m just asking for some advice. I apologize for making this a lot longer than need be. My doctors just seem to be passing most things off. I’m scared, the symptoms keep worsening.. and yes, the medication I take does help, but I fear the big picture is being missed entirely.

Thank you to anyone that takes the time to read this. I appreciate it.