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Spasticity mostly in my hips and thigh muscle

It gets very cold here in Virginia and that affects my legs really bad. My hips and thighs feel like they're not working. I had a scary thing happened to me Christmas shopping alone. I was in a long line at checkout and I bent down to put my basket on the ground and completely fell down hard. I felt so embarrassed as a kind lady helped me up. It's like all of a sudden none of my leg muscles worked. My Mom used to go everywhere with me to help and sadly she passed away in February from cancer. I have been alone and afraid to go out much now. Anyone else have these issues?

  1. Oh, goodness, !

    I am sorry that happened to you! That would have really frightened me as well. I know you are definitely not the only community member that experiences sudden leg fatigue and weakness. It's especially challenging when it becomes unpredictable. I wanted to share this article on the topic of leg weakness that I thought you might find relatable -- https://multiplesclerosis.net/living-with-ms/what-does-leg-weakness-feel-like. Also, I know this can be a big step for many people, but have you considered using a walking aid, like a cane? I know many people are hesitant to use walking aids, as they feel like it's a big sign that marks them as disabled, but I feel like nothing could be further from the truth. Walking aids allow individuals to maintain their independence and freedom. It's something to consider, especially if you experience more falls or increasing leg weakness. Here's one of our contributor's story about his cane and how he came to accpet and appreciate it -- https://multiplesclerosis.net/living-with-ms/life-my-cane. I don't want to assume that one fall means you need to consider a walking aid, but I don't want to ignore it as an option, either.

    It all depends on what will help you feel safe and secure as you run your errands.

    And, on a side note, I am so very sorry for the loss of your mother. Cancer sucks; plain and simple.

    Best, Erin, Team Member.

    1. thank you for responding. I actually have a cane with butterflies on it I have been reluctant to use because that means I'm doing worse but I will get it out and use it so maybe I won't be so afraid of going out.

    2. , I hear you. It's a bit step to start taking the cane out on a regular basis.

      Gentle Hugs, Erin, Team Member.

  2. I'm sorry for the loss of your Mom, that's heartbreaking and so hard.

    Disclaimer-I still don't have a diagnosis, so everything I have is from a slightly different viewpoint.

    I have been experiencing severe spasticity in my legs and hips for a couple of years now. When it first ramped up, I was terrified that I'd somehow blown my knee out and would need a knee replacement...in my 30s. My legs gave out and I hit the floor hard. Alone. In my bathroom getting ready to hop in the shower. No one else was in the house, and I lay there trying to get back up for a few minutes that seemed like years

    I don't live in Virginia anymore, but I grew up in SW Virginia, in the heart of the Blue Ridge Mountains. I remember how bitterly cold the cold can be in that area.

    I still struggle daily with the spasticity, and cold definitely makes it worse. I noticed that any type of compression also makes it much worse, very fast. I had to change my entire wardrobe to just help alleviate the extra symptoms.

    I can relate to the embarrassment... I have fallen at work, in parking lots, and in a couple of stores. I've used a cane at work, where people know me and I feel emotionally safe, but I haven't graduated to being comfortable using it in public. So when I go to a store, I park right beside a cart return, grab a cart, and use it as a makeshift walker. I know it may be silly to care, but I hate showing weakness in an environment that I don't know anyone and I'm by myself.

    One thing that helps me, when I can, is to get my feet at the same level as my hips. So I usually go to the couch and sit pretzel style. If I don't have that, and it gets really bad, I'll fake a yoga stretch on the floor to just allow it to release for a minute.

    I'm wishing you all the best, and hope you find something or multiple things that help. 💜

    1. thank you for the info. It's so good to know we can connect here and feel less alone.

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