SPMS
How do people cope with SPMS? I was diagnosed in 1986 (no drugs available and MRI Scanners had not been invented!)
I am confined to an electric wheelchair, and tips about living with SPMS
Also, does anyone know why Scotland percentage wise has the highest proportion of MS?
Hi
I am glad you have reached out. Here is an article from one of our members who shares some tips:https://multiplesclerosis.net/living-with-ms/heres-my-transition-to-secondary-progressive-multiple-sclerosis. And here is a forum discussion about SPMS: https://multiplesclerosis.net/stories/what-about-spms. That is interesting about Scotland having the highest percentage of MS, I haven't heard of that before. Jill (Team Member) Yes, there are many theories why, Mothers pregnant in the winter, not enough sunlight, something in the Scottish genes. Remember many Scots emigrated to the US, Canada, New Zealand where MS has high numbers
Hi,
! I hadn't even known about the higher diagnosis rates amongst Scotland natives and Scottish people in general. That's really interesting and I do hope more definitive research is ongoing into any causes or correlations. Also, in addition to the links Jill shared, I wanted to share another health leader's story about transitioning from RRMS to SPMS -- https://multiplesclerosis.net/living-with-ms/rrms-spms-transition. I know it's a pretty scary transition, but please know you're not alone in this. Also, we have health leaders that are married and they both have MS (Jennifer has SPMS) and they write a lot about living with MS, both here and on their blog. You might find their articles useful -- https://multiplesclerosis.net/community/experts/dan-jennifer-digmann. Sometimes, it's good to be reminded by people actually living with SPMS that yes, it's hard, but it's not all doom and gloom!
Best, Erin, Team Member.Thanks it is a trial, but possibly because I have suffered from MS for over 40+ years I long gone past worrying what will happy next.
A positive outcome of living in Edinburgh is that JK Rowling also lives here. She has given millions of pounds for research into MS and other neurological disorders.
When I meet my Consultant it is at the Anne Rowling Clinic, named after her mother who died from MS, sadly before she could see the success of Harry Potter. The Clinic is situated in a large building on its own, the entrance looks like an upmarket Hotel.
Sadly, I have not read any of her books!
