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Symptoms

Showing results for 'I have not been diagnosed with MS but it has been mentioned. I feel like a hypochondriac. I started having intermittent pain in my legs, mostly when I lay down at night or have my legs up. The pain can be very severe with many sleepless nights. It seems to come and go. I have the wet feeling around my ankles and have had for several years. I get twitchy muscles that are visible to the point that I can record them. I get pins and needle feelings in my limbs. Recently I have been having a crushing feeling in my upper arm with pins and needles going to my fingers. My chiro thinks it is a pinched nerve. I just hate going to the Dr because they act like I am crazy. I also have a hard time remembering common words in conversation. Does anyone else have the leg pain when laying down or the muscle twitches with MS? '

  1. I'm sorry to hear that you're experiencing these symptoms - and it sounds like you have been for quite a while now. It can be frustrating to have symptoms without an explanation or a diagnosis. One of the challenging aspects of MS and autoimmune conditions as a whole is that the symptoms can be attributed to so many different things. It's hard not having one test that will definitely rule out or confirm a diagnosis. That said, the best approach I have found is to go to the doctor, get the tests, and get a second opinion if needed, so you can get a more accurate assessment and explanation.


    Also we have a lot of articles and resources on this site that you might found helpful too. I'm sure others will chime into this conversation here as well. And of course, we're happy that you've connected with this community here so you know that you're not alone in this experience.
    - Alene, moderator

    1. Hi, ! I am sorry you are experiencing these issues! I wanted to mention that leg twitching and pain while trying to sleep does come up in this community a fair amount. Whether what you are experiencing is related to MS, another condition, or RLS (Restless Leg Syndrome), we know it can be a frustrating issue! I thought you might appreciate this article on the topic -- https://multiplesclerosis.net/living-with-ms/nightly-leg-movements-restless. And, I hope you keep pushing for an accurate diagnosis. I know it can be tiring to have to keep advocating for yourself and your health, but it's worth it!


      Best, Erin, MultipleSclerosis.net Team Member.

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