Hi I'm STILL in the doctor phase and no answers. Is there anyone that thinks they have it but not diagnosed yet or in the middle of figuring it out or have it without brain lesions. Feel free to private message me with your story. Thanks in advance
Lori Foster Admin
Hi . We have had many members come, go and stay in this community during the various stages of seeking a diagnosis, so I am absolutely certain you are not alone. Some people who have symptoms and no lesions are diagnosed years later when lesions finally appear. Others find out they have one of many health conditions that mimic MS. Here is a list of those conditions that your doctor should be ruling out: https://multiplesclerosis.net/diagnosis/ruling-out-other-health-conditions. I thought it might interest you. I hope you get some answers soon and that you get some relief. Thinking of you. - Lori (Team Member)
Brian Sears member 368
I have been experiencing the same, my neurology appointment was bumped from April 23 to June 2nd 2022 due to Covid19. My practioner basically says in a round about way that it's all in my head. No one seems to take me seriously which is distressing. My wife a nurse of 22 years told me to keep an open mind because after a year of test through my practioner revealed that blood and other test results from two practioners (second opinion) came back unremarkable. I have been called a hypochondriac or that I suffer anxiety illness which is total BS. I have a long list of symptoms and my daily routine all depends on how I feel when I wake and move. I don't know if I have MS but I have debilitating days with some very weird symptoms from my head to toes. Thanks for allowing me to share. I hope that you can get a diagnosis to help ease your mind.
Erin Rush Admin
, I am so sorry you are in this position. I wish I could say your circumstance was a rarity, but I know many people living with chronic conditions like MS have been told that 'it's all in their head' by medical professionals and loved ones. It can be disheartening and soul crushing to have your pain and experience disregarded like that. Whether it turns out you are dealing with MS or another condition altogether, you have the right to be properly diagnosed, to have your symptoms taken seriously, and to be given proper treatment for your condition. Please do keep hanging in there, although I know it's hard some days.
Best, Erin, MultipleSclerosis,net Team Member.
I feel the same exact way. My last neurologist is supposed to be specialized in MS but because I don't have lesions he said there is no way I could have it. Well then whats wrong with me?!?!?!?!
Erin Rush Admin
, I want to echo everything Lori wrote. Also, while I won't hazard to diagnose you, there is a less common form of MS that researchers are still learning about. This MS is marked by a lack of demyelination, but it is a very real form of the condition. You can read a bit about it here -- https://multiplesclerosis.net/news/new-subtype-discovered. But, as Lori mentioned, it's also important for your physician to rule out other conditions with similar symptoms to MS. I hope you get answers very soon and please keep us posted, if you feel comfortable doing so. Best, Erin, MultipleSclerosis.net Team Member.
I'm not sure how many more conditions can be ruled out. The only other etching they want to try is some neurologist that takes like 4 hours that I cant get in to until January 2023
Lori Foster Admin
Hi . Have you considered seeing a rheumatologist as well to rule out autoimmune arthritic diseases? Maybe your doctors are looking in the wrong direction. Gentle hugs! - Lori (Team Member)