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Temperature Sensation issues

One of my symptoms that I get during a relapse, and am currently having right now, is temperature sensation differences between the back side of my left butt/leg/foot, compared to the right. When I sit down on a toilet, or walk barefoot on a cold floor, I can feel the coldness with my right side, not my left. It started out small and has gradually made its way to my whole lower left side. But the weird thing about this symptom is that I still have feeling. I can pinch my leg/foot/butt and feel the pinch or scratch. It's just the sensation of hot or cold that is gone. I've had this two other times with relapses and each has resolved. I'm keeping my fingers crossed and just wanted to share this symptom to see if anyone else can relate? I'm also wondering if there's a scientific or medical term for this as well?

  1. Hi Mel1981! If this is a new or worsening symptom for you, it's a good idea for you to let your physician know about it. However, it sounds like you have been dealing with this issue for awhile during relapses, if I read correctly. While we cannot offer medical advice or diagnosis online, for your safety, I will say that your experience sounds within the normal range for someone living with MS. What you are experiencing falls under the definition of paresthesias, which is "an abnormal sensation of tingling, numbness, or burning. Paresthesias are usually felt in the hands, feet, arms, or legs, but can be felt anywhere. The sensation is usually unpleasant." I would definitely mention it to your doctor, since you still have feeling, but not sensitivity to hot or cold during these episodes. You can also share on our Facebook page to see if you get more community feedback -- I hope this helps and thank you for reaching out to the community! We're glad to have you here. Best, Erin, Team Member.

    1. MS had been a tentative dx for me for over 10 years and it didn't help that I had a neurologist back then that didn't give a crap. I just persevered since I didn't have insurance. I have off and on symptoms and they have become worse. Last year I spent 3 months with symptoms sometimes so severe I could not function and made many ER visits. Unfortunatley, ERs aren't able to treat for MS flares. I have a decent neuro now and he ordered MRI of brain, C & T spine which I didn't get done because it entailed about 4 hours and I never felt well enough to go. Autumn occurred and I felt much better. So now symptoms have started back. It's been warm for us. Today was 81 °. Last night I spent hours trying to organize since my daughter is coming to visit. I did sweat but thought nothing of it. Today I have paresthesias in my hands and arms, legs, and face. I woke up exhausted and just didn't feel well. I know heat is an issue for me so this bit of overheating may have played a part. However, this past weekend, I think I had a migraine with gastroparesis, nausea, vomiting, etc. Wondering if I had just experienced a prodrome. I keep a log of symptoms. I think last year at this time I had to go to the ER. I have steroids to take if my symptoms get worse... painful muscle spasms/contractions, torticollis, facial paralysis, dysphagia, etc.

      I guess my question is, can physical exertion and heat cause symptoms other than just fatigue or am I starting to have a flare?

      1. Heat - darned heat. Inner body heat that will not go away. I thought it was menopause however now i'm beginning to understand that it is MS that is doing this - my goodness don't we have enough to copy with.

        Hot food, hot drinks bring on a few attack of heat, waking up in the morning, straight after a shower - you name it there is heat!

        1. OH AMAMS!! What you said is exactly what I've been looking for! My situations began just as a shower situation! I'd take a

          shower--never hot--but I'd turn the water cooler and cooler til it would be all I could take, and stand in that water to cool

          my body off-just thinking this is what I needed to do. I get out of the shower, start drying off and little by little start getting

          hot as if I'm in a room made just for that purpose. Then I keep getting even hotter--sometimes thinking should I get back in

          The shower. I start sweating, if I've been dumb enough to start getting dressed, pieces have to come off! I have to find a

          fanto get directly in front of. I'm weak, I become panicky. It's awful. I had no idea if it was an MS thing or something else. I

          don't know whether to automatically assume a new oddity is MS or not. Heat is my kryptonite. Now I have to deal w it this

          way? Trouble is, I don't know How to deal with it. It can start anywhere, any time.

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