Tingling: Never goes away but worse when lying down
I do not have a diagnosis. I hesitated to even signup for this but I have too many questions.
2.5 years ago I had pins and needles, electric shocks, icy hot feeling like being scalded with hot water, and TV fuzz patches from the left side of my face to my toes. As well as some days my foot would feel as though it was being squeezed. This went on over 8 weeks. Symptoms varied in intensity.
I got an mri and blood work, nothing.
Since they dissipated, I’d have have days where some would be back, or even just moments.
But it’s back now constantly. The onset was extremely painful pins and needles. I was just sitting eating dinner. But they didn’t die down for over an hour after getting up. Intensity lessened but they haven’t fully gone away in several fays. From my calf to my foot left side.
The weird part is that the intensity does come an go, gets worse at night and when I am sitting or laying down. All my left side. I haven’t had many electric shocks, some. And no hot water feeling. The fuzzy feeling from my face on down my left side worsens at night.
But my question is: does that fact that me sitting or lying down makes the tingling and foot squeeze worse, rule out MS??? Getting up does not make it go away. But it’s so weird. I just don’t understand it. I am going to the doctor but it’s hard not having questions.
One thing I’ve had for years and if I do get a diagnosis I will wonder if it is related: smelling smoke. Comes and goes at random
You said you had an MRI. Did a neurologist read it? You do not mention lesions, so that's why I ask. You could have MS (there are many symptoms) or another neurological problem. Please find a good neurologist to help you. God bless your journey!
Yes! No lesions. My step mom has MS and says it sounds much like a relapse. I have many other other symptoms too but the tingling and fuzz/squeezing/electric shocks which have been getting more frequent since this recently started up again- is the most prominent or noticeable besides the dizziness and fatigue.
I realize it’s kind of silly and not always helpful to ask questions without a diagnosis. It’s just all consuming. No lesions or abnormal blood work but I’ve been told to keep going back to the DR cause they can appear later?I went to 7 neurologists in my area who all told me there was nothing wrong, one told me I was imagining my symptoms. I finally found a wonderful neurologist 100 miles away after speaking to a new co-worker who's mom had been very ill and she couldn't find any help in our area either. When you KNOW something is wrong, DON'T give up. I get "electric shock" pains in my side, my face, my leg. I have numb episodes, tingling feet and fingers, sharp pain through my eye, walking off-balance, lightheadedness, terrible fatigue. The last test that told my doc that the diagnosis was MS was a spinal tap. MRI's don't always show what's going on and that was verified by two neurologists. I've been existing with MS for 42+ years now. Been there.... done that. And smelling smoke or a dirty ash tray, I smell that every so often and I do not smoke, never have. Good luck.
thank you! And for the resources below. It’s a weird internal battle of “this isn’t a big deal/but what if it is?” Since the start up of symptoms this time, I’ve had more things come about like shocks on left side of my tongue, and sharp, shooting pains down my arm into my hand making it hard to keep holding my phone, or whatever it is. Completely weakens my motor control for the moments it is happening. Takes my breath away. Comes and goes. Then moments of electric shocks.
The possibility alone of it being MS is enough for me to push for answers even if I feel crazy about it. Because if it is, I don’t want to have disregarded it all and one day wake up to something more severe or debilitating which I am sure happens a lot. It’s a weird limbo.
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We get it...keep pushing for answers and know we're here for you.
Reach out anytime. ~Doreen (Team Member)
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We're glad you found this community and appreciate you reaching out.
Symptoms of MS are different from person to person. That being said, diagnosing MS can certainly be challenging. I thought I'd share these two articles, which may provide some helpful information: https://multiplesclerosis.net/diagnosis and https://multiplesclerosis.net/symptoms.
Always know this community is here for help and support. ~Doreen (Team Member)
