Unusual head sensations
Sometimes I hear whooshes and clicks in my head after going to bed and trying to fall asleep. No pain with it, just annoying. It happens right when I start falling asleep and will wake me every time. Doesn't happen often, thank goodness! Anyone else?
Does constant loud tinnitus count, or does it have to whoosh?Any loud intrusive noise introduced by MS counts in my book, darling, and then there are the reactions to noise, like the involuntary jerks and spasms when startled by anything really, but mostly loud noise! Please see myoclonus!
Love, Therry, a Team MemberAw, poor you, that sucks. Those would definitely come under the "heading" of unusual head sensations. Hope they don't happen often! Hugs, Kim last night was the first time in years!
I'm sorry to hear that you're dealing with this, although as you said, grateful that it's not every night. That has to be incredibly frustrating that it actually wakes you out of a sleep! When it does happen, does it last long or does it go away soon after it starts?
Alene, ModeratorGah, it hasn't happened for a long while, but I do recall it being incredibly stressful. Those weird head trips wouldn't let me stay asleep for long. They must have quieted at some point, either later in my sleep cycle or when I napped in my recliner the next day to catch up on my sleep. I had sleep apnea and trouble staying asleep before this started (and still do), so sleeping through the night is impossible and no longer a goal. I now hope for 3 or 4 hours at a stretch, and can do that right after I go to bed. But then I wake up and go back to sleep pretty quickly, waking every hour or 2 until the alarm goes off. Somehow I manage to get 6-7 hours and can get through the day without napping. Probably through sheer will! Thanks for asking 😀 Hugs, Kim wow, that's quite a process that you go through just to get some sleep. My goodness! I feel for you, because waking up just as tired and you went to sleep is incredibly frustrating. I'm at least glad to hear that the unusual head sensations haven't happened in a while. Let's hope that they can stay at bay too!
Best
Alene, Moderator
I thought I was going crazy the first time something like this happened to me! Currently, I have been taking a time out in the evening between work and dinner that I close my eyes and rest for half an hour. And lately, during this rest, I see images (very random and never the same) with my eyes closed and I hear... usually about 15 minutes in, when I'm really relaxed, sounds that aren't real. Last time it sounded like a gunshot or explosion, my muscle jerks sent me straight off the couch and onto the floor. I've heard music that wasn't playing, I've heard waves, I've heard my own pulse, I've heard tapping. It sounds like fiction, but is so very real. And so is the reflex/nerve response.
Support, hugs, and much love 💜💜I can totally understand why you felt that you were going crazy the first time you experienced these sensations. Only those of us who have been through it know this very special kind of lunacy, lol. So lately you've been napping and having visual and auditory hallucinations, along with muscle jerks that propel you out of your chair and onto the floor--Wowwee and yikes! I hope you didn't hurt yourself so badly that you had to call 911! Here's hoping it stops soon. I remember how exhausting and stressful it is. Can you connect it to anything that happened during the day? For example, a bladder infection (or any infection) can cause such weird, temporary cognitive problems. Lack of sleep, emotional or physical stress too.
Those weird head sensations can come on for no reason at all of course 🙁 Our shredded CNS nerves can randomly send us into orbit and visit strange new worlds! I'm always trying to find a reason for my weird head trips beyond that, though. I think because I want to believe I have some control over my life, lol. Big hugs, support and love right back atcha, Kim, moderator
it's definitely a wild ride! I started stopping about six months ago to give myself a scheduled rest break, just overall exhaustion hanging over me. I work on average 50-55 hours a week, and I'm the lone person working accounting for a multi million dollar manufacturer.
I've always had a very active imagination, so the visuals when I close my eyes aren't new... but now it's not based on my thoughts and internal dialogue. The sounds though, that just started around six months ago.
Thankfully I'm good at falling without hurting myself. I laugh when I think about it, it was straight out of a cartoon. My startle responses have been getting stronger through the last several years.
I'm betting that it's tied to stress, going through the process of multiple doctor appointments and tests, fighting to get tests and pushing for a diagnosis. It intensifies when I start getting close to my next appointment, and I've got one in a couple of days that I plan to ask for blood work and a LP.
I'm hoping that it all calms down a bit once I'm through my upcoming appointments and I can get a break in between. 🤞🤞🤞🤞
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