A clinical trial is when a new medication or treatment option is studied with a group of people. Have you ever taken part in a clinical trial? If so, how was your experience? If you haven't, would you ever consider participating in one or not?
I've never taken part in a clinical trial. I have at times considered it. Particularly before I started my recent medication (Tysabri). There seemed to be a time when it felt like nothing would stop my progression and the seemingly unending stream of exacerbations I was experiencing. So my consideration was based on hoping to change my own experience with MS. My concern about clinical trials was never about the unproven medication I might receive but rather that I might get a placebo that had no medication in it at all. I know many would have the opposite concern.
My concerns for myself aside, I recognize that participating in clinical trials is something that helps the greater good. Clinical trials are an absolute necessity when trying to eradicate Multiple Sclerosis. I wish I could say I had the courage to put my own health aside to take part in one, but I’m not there yet at this point in my life.
So, what are your thoughts and experiences on clinical trials, whether you’ve participated in one or not? (And if you know someone that may have something to say about this, please direct them here!)