What's your MS story?
How many years have you been living with MS? Which type of MS do you have? How has your life changed since diagnosis?
I have had MS for 40+ years. I have been blessed with 2marriages and one daughter. My career as a nurse spanned over 35 years before I went on disability. I got to be a semiprofessional clown for 3 years. I am presently 70 years old. Can not drive and have help during the week. I still walk with a walker and do my own ADLs. MS ran in my family. Both my Mom and sister died with MS. Again I am blessed.
You go girl. I was told I may have it over 38years ago but as you I still walk drive and yes, I am on my second marriage I have three kids from my first marriage and she walked out when there were 6,8,10 years old that was 34years ago too. Yes, I took care of them as I am Number 2 of Ten kids myself and was not going to leave my kids, yes, they have grown kids as well I got married again the second time to the women I should have married the first time and now have 6 grandkids and YES I even have now 4Great grandkids as well. I grew up in programing for CnC Machines in the aerospace industry I learn how to research and look up things and even tough Programing at MCCC here in Michigan. Very proud of that as well. Keep going and yes make sure you that Vitamin D3 250mcg I take about 3times a day. That is what I take, and the doctors can't think of why I am still walk with 18Leagins on my spine. I don't think of the fact that I have this Illness I just keep going as GOD wishes me too. I hope I added something good for your day. Mike Tarpey Activities of daily living- ADLs
I have PPMS and now in a wheelchair and in a care Facility. I have put up with mess since September 1999
How is it there? Hi Rodger, Thnxs for your sharing your life with Ms. Keep going stay strong. I have ppms since 2013 . It all started back in 88 when the tingling began n cramps but my G.P sent me off with pain killers- bthen in 93-4 demanded an mri which told em I had rrms then!
then was blackmailed to marry from P.K now he's left me with 3 kids. Like you I'm thankfully to God for this test. Good luck keep going. Best wishes Syria xx
I have lived with MS unknowingly for 24 years before an official diagnosis. Overall life with MS a fun 36 years and currently with PPMS.
Before being diagnosed with MS, I was mostly focused on work and on being successful. It did not matter how much time, focus, or energy it took. My goal was being the best I could be.
MS has refocused my vision of life. I wake each day to enjoy the simple things in life I had previously missed along the way.
A morning sunrise or sunset, for example, is filled with vibrant and ever-changing colors. Seasonal variations from spring to summer, fall, and then winter change the landscape and have their unique beauty.
I spend my time visiting new places and standing silently to take in people, architecture, sounds, and the simple progression of life.
Staying positive is not always easy, but I have found that taking an internal inventory of what is good in life forces me to focus on the good: family, good friends, a place to live, food on the table, helping others, and waking up every day.
Wishing you all the very best
--2MarieG777--2014 RMS- 34 brain lesions, cognitive issues yardage yadda... I was diagnosed with MS 23 years ago. I too have felt like you and refocused some of my energy to trying to live my best life. I love your story because you took a negative and turned it into a positive.
I was diagnosed about 8 years ago. I have RRMS. And it is mild for the most part. I've had vision issues, numbness, tingling, coordination issues but most consistent is fatigue and cognitive issues. The fatigue has changed my life. I don't want to make plans, I don't like to go out because I hit a wall and pay for it the next few days. The pandemic hasn't effected me at all because I'm just fine in my house and nothing has changed (except commuting to work). But what has been scaring me the most is brain fog, finding words, presenting to colleagues, memory loss and lack of focus. I try so hard and I know it effects my work and that scares me to death. I am not the person I was and my self confidence has taken a huge hit. I am an anxious person innately so these issues only add to my anxiety.
I am not married and was unable to have kids but looking back I would never have been able to manage on my own. This is the most upsetting because all I ever wanted was to be a mother and wife.
And this is "mild"!
I so feel for you and yes it does turn our life upside down for sure. Most of what you shared I have felt as well. Trying to figure out that word, remembering what I'm looking for or thinking about.
Tough allthough for me staying positive and taking an inventory of all I have been blessed with helps. I did decide in 2011 to retire and focus on writing and helping others on their MS journey.
Wishing you the best and please stay in contact
Mike Russell
AuthrorI so feel for you and yes it does turn our life upside down for sure. Most of what you shared I have felt as well. Trying to figure out that word, remembering what I'm looking for or thinking about.
Tough allthough for me staying positive and taking an inventory of all I have been blessed with helps. I did decide in 2011 to retire and focus on writing and helping others on their MS journey.
Wishing you the best and please stay in contact
Mike Russell
Authror
