Who to believe??
My Dr. Says ms..My Nuro says she wants me to see a Nuro Surgeon. What? Why? I only got to talk whith her assistant who knew nothing. Here are some of my symptoms- jelly legs, numbness in hands, lost all feeling in one leg, (didn't know if I would get it back) pins & needles which never stop, but at times so bad my face, hair, lips and tongue are even effected, fatigue at times I can't stand and when I can I can barely walk, stabbing pains like knives stabbing thru my body. And most recently, The Hug. Which for it was no hug. I felt as tho all my organs were being squeezed together and I was trembling inside. These still aren't all my symptoms but I'm sure you all know the rest.
But after the assistant relayed my concerns to my Nuro she said, well it could be a nerve disease?? Well Isn't MS a nerve disease?? This all happened after my MRI's today. And to top it off I have new lesions.
I feel like screaming and crying at the same time. My husband says now we need to go to a MS Specialist.
Hi
. Your husband is giving you some good advice. The fact that your doctor had an assistant talk with you instead of having this chat in person is reason enough. Your neurologist might have good reason for sending you to a surgeon, but that recommendation should come with a thorough explanation as to the findings of the exam and the MRI. You need and deserve a neurologist who will be a true partner in your care. The National MS Society has a tool for finding a specialist in your area. Here is a link: https://www.nationalmssociety.org/Resources-Support/Find-Doctors-Resources. I hope this helps and that you get treatment and relief soon. Keep us posted if you feel comfortable doing so. Best of all wishes! - Lori (Team Member) Thank you Lori. I got really bad jelly legs and fell, (again) last night broke 2 fingers on my hand. When ever I fall I always try to catch myself with my hand, so I don't land on a hip. Breaking a hip for anyone is obviously not good, but I think when your older in can be even worse. And your right about having an assistant calling me. I couldn't believe it. Especially since she couldn't answer one question for me. She would go back and forth to ask the Dr. It was like the Dr. didn't want to talk with me. One of the other things I wanted to know was about all the new lesions on my brain. She had her assistant tell me they were all strokes! I think I would have had known if I had that many strokes. Especially since none of them were there from my previous mri.
Thank you for the link, I'll check it out.❤️That sounds painful,
! I hope your fingers heal quickly and perfectly. Have you thought about using a walker or a quad cane? That might give you a little more freedom and provide some safety. Thinking of you! - Lori (Team Member)
I'm afraid it's coming to that. Thanks afain!again!! 🥰
- You should definitely go to a MS neurologist. They will be able to explain everything to you and figure out what you exactly have and the best way to treat you. If you are not happy with that MS neurologist, please find another one.
