Why aren't Dr's Fighting for approval of HSCT?
My brother lived with MS for 11 years and for the last 2 years he has been researching HSCT (Hematopoietic stem cell transplantation) which is the transplantation of multipotent hematopoietic stem cells, usually derived from bone marrow, peripheral blood, or umbilical cord blood. This procedure is not approved in the U.S. although it has been researched and tested since the 1990's, because the big pharmaceutical companies don't want it approved! They will lose BILLIONS of dollars a year from MS patients not needing medication ever again. HSCT has a 86-91% success rate-- not putting MS in remission but ERADICATING it completely!! My brother had to travel to Mexico for the procedure (it is also performed in Russia and Thailand) and costs about $85,000. Yes that is a lot of money to come up with and insurance companies aren't going to help pay for it, but it is definitely worth it to be MS free for the rest of your life. My brother was unable to drive and could not walk without a can and a month after the procedure, he is walking without a cane! Definitely do some research about HSCT!
I agree, now in 2024.
I've been reading about HSCT for 20 years, I asked my MS Dr 5 years ago when would HSCT be available, she said HSCT could be available in the USA by 2024, here we are and no HSCT, disappointing.
I've concluded most MD's are cowards/not leaders, instead of stepping ups and taking a chance at starting HSCT clinic, they choose the FDA approved drugs vs creating a HSCT clinic, which is possible. But no one will step up.
Good news: Perhaps the MS powers to be are closer than ever to solving the MS riddle, the newest DNA study shows MS was in play 2,000 years ago when we started eating animals. The study suggests our DNA evolved to tolerate the new germs/virus's and etc. The germ we didn't get protection against, is the Epstein Barr virs, or mono, in the herpes family.
If the DNA study helps prove MS is caused by many variations of our DNA via evolution, when we are infected with Mono, the MS journey begin slowly until MS is triggered down later in life causing MS damage to accumulate.
