Caregiver Perspective: Compassion FatigueIt seems ironic, but did you know that caring too much could actually harm you? There's a fancy name for it called...reactions8comments
Sparky Jaw: Researching Trigeminal NeuralgiaI always called it 'sparky jaw.' Since I was a child I would have this incredible pain along my jaw. It felt...reactions24comments
Caregivers and BurnoutCaregiver: what’s the first thing that comes to mind when you see this word? This may vary depending on whether you are...reactionscomments
Community Spotlight: First Descents and Its Programs for People With MSWe sat down to talk with Kristin McMaster of First Descents, a nonprofit that provides free outdoor adventures for young adults (ages...reactions2comments
Steroids: The Lesser of Two Evils“The doctor has ordered a course of steroids” is a dreaded phrase that those with Multiple Sclerosis hear all too often. For...reactionscomments
How Do You Feel After an Infusion?The other day, someone asked me how I usually feel after an infusion. Because that is a pretty broad question with such...reactions30comments
Doctors, Nurses, MRI's...Oh My! The Importance of Finding The Right Doctor for YouLet’s face it, when you’re diagnosed with an incurable illness your life is filled with doctor’s appointments and more. You don’t just...reactions7comments
Supporting My Support Partner: Part 1Living with multiple sclerosis (MS) has made it important for me to accept assistance and support. I had to learn my own...reactions5comments
Prednisone: Maybe I Should Just Hide for a While?Prednisone is one of those medications that pretty much everyone living with multiple sclerosis (MS) is either overly familiar with or has...reactions9comments
You Are (NOT) My SunshineThe other night as we were eating dinner, I was listening to my mom explain to my three-year-old the benefits of sunshine...reactions20comments
Irritable Bowel Syndrome (IBS): What It is and How It Affects MeAround the time I started learning how to better control the misery of MS, I discovered that misery loves company. It came...reactions20comments
Stable Disease Does Not Mean Symptom FreeRecently I was talking to a nurse; not my nurse, but someone who came to the house to help my mother with...reactions10comments
Before vs. After MS: Can We Go Back to "Normal"?Have you ever thought or wondered if you will ever go back to ‘normal’? Whether it is after an MS flare/exacerbation, or...reactions22comments
MS and Continuing Self-Education“Education is the kindling of a flame, not the filling of a vessel.” Socrates, Yeats, Plutarch: who said this? This is another...reactions4comments
MS In America – Relapse Frequency and DurationMS relapses occur when you experience new symptoms or when existing symptoms suddenly worsen. To be considered a relapse, these symptoms must...reactions3comments
The Challenge of Staying Cool, Calm and Alert in the Waning Days of SummerFor me, the challenge of staying cool is about staying cool enough. Enough to keep my head clear, to keep my limbs...reactionscomments
Why I Do What I DoIf nothing less, COVID-19 and the protests have highlighted systemic inequities faced by Black Americans. Multiple sclerosis research is no different. That...reactions6comments
My Nurse Stole My DignityI've lost a lot in my 23-plus years of living with Multiple Sclerosis. My career, numerous partners and relationships, my ability to...reactions51comments
Isolation and FatigueMental health is one of the most critical pieces of our overall health we can tend to, but it is often glossed...reactions27comments
Life With MS Fatigue Feels Like a Story for OprahI hate when extreme fatigue messes up my whole day. Today is no different. I had things to do. A list of...reactions15comments
