nferia
"I keep having Myoclonic seizures. We do not know if they are connected to my MS or, my epilepsy but when they happen my neck and head feel like their trying to spin about... sometimes my arms are affected. I haven't had a full blown seizure in years, that is what leads us to believe my MS is triggering me. It's painful when it happens, and most of the time, I don't even know it's happened until afterwards. It happened today, and I was aware, and it hurt. Alot. Does this happen to others? Is there a blog post on seizures and MS? If not, maybe this could be an idea to explore?"
, I am sorry you are dealing with myoclonic seizures. The topic of MS and seizures does come up in this community from time to time. In fact, one of our contributors talks about her experience with seizures here -- https://multiplesclerosis.net/living-with-ms/seizures. And one of our members has talked about myoclonic spasms -- https://multiplesclerosis.net/stories/electric-chair. Also, another of our contributors shared a bit about her complex seizures here -- https://multiplesclerosis.net/living-with-ms/manage-fairly-uncommon-partial-complex-seizures. It might be time for us to create some more articles/information on MS and seizures and please know you are always welcome to share your own experience with seizures in our forums anytime!
Best, Erin, MultipleSclerosis.net Team Member.