Challenges of Being an MS CaregiverIn our MS In America 2017 survey, we gathered insights and information from people living with multiple sclerosis (MS) as well as their caregivers. As a chronic and progressive disease...reactions1comment
Four Keys to Succeed in MS Caregiving RelationshipsOK. We get it. For those of us living with Multiple Sclerosis, most are quick to say that the disease doesn’t define who we are. I have MS, MS does...reactions3comments
I Relate More to My Elderly Neighbors Than to People My Own AgeWhenever people asked me what that first MS attack felt like, I was frustrated and at a loss. I threw out words such as fatigue and weakness only to hear...reactions23comments
Money isn't Everything — But It Could Buy a Lot of Happiness“All I ask is a chance to prove money can’t make me happy.” –Henny Youngman (1906-1998) So you didn’t win the genetic lottery of excellent health, old money wealth, and...reactions1comment
MS and Trouble SwallowingMultiple sclerosis (MS) is a chronic, progressive condition that affects the central nervous system. As MS causes damage to the nerves, it can cause a disruption in how a person...reactions12comments
Not Always a Placebo! Types of Clinical TrialsWhen many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among...reactionscomments
Don’t Think Too Hard: A Few of My Tips for AdaptationWe all know that Multiple Sclerosis (MS) tries to take things away from us and so many of our goals involve trying to not lose those things (or trying to...reactions1comment
Leg WeaknessMy main multiple sclerosis symptoms are scarce, thankfully. For me, these symptoms include fatigue and lassitude, muscle weakness and occasional pain. Arm and leg weakness is something I want to...reactions43comments
MS, Penny, Ferdinand, And The Benefits Of Adopting Older PetsThis is a very rough week for me. As I write this, my beloved Penny will have passed away nearly a year ago (November, 11th). As I have written previously...reactions19comments
Is It An Exacerbation? Listen To Your GutA large majority of those suffering from Multiple Sclerosis live in fear of their next exacerbation: the next time their symptoms will worsen and life as they know it will...reactions2comments
It's In My Genes, I GuessNo, I’m not talking about having multiple sclerosis passed genetically. Although we know that some people are more genetically predisposed to contracting MS than other people. There is a different type...reactions3comments
Why Making Goals is Important Despite Having MSAfter my first MS attack in 1998 landed me in the hospital for five days of round-the-clock Solumedrol IVs and diagnostic tests, I was sent home with a script for...reactions4comments
The Unthinkable: MS, Death, and Life ExpectancyIt’s time for me to talk about the unthinkable, the topic that is extremely taboo for many of us with multiple sclerosis. I’m talking about the effects MS can have...reactions37comments
MS Has Changed the Way I Experience the WorldThere was a spot I used to visit before I got Multiple Sclerosis (MS); time and time again I would just go there and sit. Sit, maybe drink coffee, think...reactions24comments
Paying The MS Tax Part 2: Fear Of PaymentA while back, I wrote a piece on what I call the “MS Tax”, that rough period of time after being active where we are paying for doing something. It seemed...reactions55comments
What Is the Link Between Asthma and Multiple Sclerosis?In our MS In America 2017 survey, 15% of respondents noted that they live with both MS and asthma. Asthma is a common lung disorder that is characterized by swollen...reactions2comments
The Differences With MS After The Ten Year MarkA month or so back, I noticed a couple interactions in the comments section of one of my articles that got me thinking. The interaction, nearly argument, was between someone who...reactions217comments
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be...reactionscomments
The Joy of Getting a Spinal TapGetting a diagnosis of multiple sclerosis does not come easily. I’m not even referring to the onslaught of symptoms, less than qualified doctors, or the anxiety that comes with not...reactions50comments
How I Tackle Boredom Living Alone with MSRetired on disability and struggling to bring structure to your day? It’s something I face upon rising that is finally getting easier to solve. In the beginning we tell ourselves...reactions10comments
