Has anyone experience a loss of emotional being?

Within 3 years of my RRMS I started to notice…I didn’t care about myself…then my husband and finally my kids….I intellectually love them but not in my heart anymore….horrible stuff..been prescribed some anti-depressants and well they just made me nuts…Hope someone out there understands my experience and knows of what can help…this is worse than the worst of my physical symptoms. Thanks Lisa


Community Answers
  • caya1430
    1 year ago

    Thank you LIsa for pointing out something that I have dealt with and still do, all my life. I’ve struggled with mental issues, especially emotional breakdowns since an extremely young age. Many therapies and antidepressants later now my MS diagnosis. I disagree with therapists. It’s the MS that destroys our emotions and how we process thoughts/feelings. I thought I was the only one with this different problem. People would think that I’m cold hearted. Who will understand? It makes a lot sense to me now. Thanks! You are not alone.

  • Lisa22 author
    12 months ago

    Sorry for the late reply…Am glad I am not alone..But I wish you didn’t have it too.

  • Dimitri
    1 year ago

    I experience this as well.
    I’ve spoken to a therapist and my ms support group about it and they all come to to same conclusion; It ‘s depression. Personally I think it’s something bigger. I’ve experienced depression before and this is worse. I’m currently on an anti-depressant and I feel that it helps, but my feels and emotions are still so blunted.

  • Lisa22 author
    12 months ago

    Sorry am responding so late. Depressions is a big word and doesnt actually describe this problem. Anti-depressants dont work well for a non-depressed person.

  • Lisa22 author
    1 year ago

    It’s somewhere in our brain…that has been attacked mysteriously by MS..I guess most therapists would classify it as depression…but noone knows what to do.

  • Meagan Heidelberg moderator
    1 year ago

    Hi Lisa22-
    Thank you so much sharing with us and our community. Please know you’re not alone, and we are always here for you!
    Here are a few helpful topics that you may enjoy reading on our site; https://multiplesclerosis.net/treatment/counseling-emotional-therapies-options/.
    https://multiplesclerosis.net/symptoms/depression/.
    https://multiplesclerosis.net/living-with-ms/the-importance-of-talking-about-your-struggles/.
    https://multiplesclerosis.net/video/reality-depression-anxiety-and-emotional-symptoms/.

    I truly hope that these are not overwhelming. Please always know we’re here for you! Talking to people, whether it be a counselor, a friend, or even a stranger at a local support group (http://www.nationalmssociety.org/Resources-Support/Find-Support), can be such a helpful tool.

    Thinking of you, and hoping you find the support you need.
    Meagan, MultipleSclerosis.net Team Member

  • Lisa22 author
    1 year ago

    Thank you for the resources…Unfortunately none of them discuss my exact problem.

  • Sandy DeFalco
    1 year ago

    Hi Lisa my name is Sandy and I am a 53 year old man and I have secondary progressive MS. I understand your loss of emotions I thought no one else felt like I did. I have no passion for anything in my life. Even things that I used to love to do and wanted to do forever now I just don’t have any want to do anything. I think this is a rare symptom that not everybody with Ms understands. People without Ms would never understand. I just wanted to reply to your post that you are not alone and this symptom really sucks!
    Try and have a nice day, Sandy.

  • Lisa22 author
    12 months ago

    Sorry just saw your nice message Sandy. Knew it was rare…sad to hear you have it too. It sucks.

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