Let's Talk About Aging and Multiple Sclerosis...In 2010, I received funding to study quality of life of both the person and their caregiver....Reactions0reactionsComments4 comments
My Turn to Tell My MS Story...I was a caregiver. So much of unnecessary pride, isn’t it? And then boom. MRI done, full of brain lesions. My neuro confirmed: it is MS....Reactions0reactionsComments10 comments
Parent of son with MS Lives in Fantasy World...I am a 58 year old caregiver of my 55 year old "husband" (not legally) who has lived with MS since the late 90s....Reactions0reactionsComments4 repliesCoping
How caregiving made me a better man...I'll never forget the things I've learned as a caregiver....Reactions0reactionsComments1 repliesCaregiving
The end game...I have posted in this forum several times about my caregiver relationship with my fiancee Tracey....Reactions0reactionsComments13 repliesCaregiving
New Diagnosis and Grieving ...I was always the caregiver, the one who did it all and never needed help....Reactions0reactionsComments3 repliesCopingDepressionDiagnosis
It's Alright to be Afraid...I informed my son Scott (my primary caregiver), showered, packed a bag and ate dinner, and I was in the hospital room by 8:00 that night....Reactions0reactionsComments2 comments
End Stage Caregiving: When Love Is All You Have Left To Give...She was twelve years into her battle when I met her, and after six years, I became her primary caregiver after she developed multiple stage 4 bedsores....Reactions0reactionsComments6 comments
Coping, with the help of music...Be open to the advice of others, but understand that ultimately you, the caregiver, that will determine how you will move on....Reactions0reactionsComments2 repliesCaregiving
Bandaid Solutions...Over the years, I've heard a few analogies from people about what it's like to have MS or to be the caregiver for a person with advanced MS....Reactions0reactionsComments2 repliesCaregiving
My MS is bad but that doesn't make me bad...My wife is my caregiver and does it all for me....Reactions0reactionsComments2 comments
My Story...I guess that's where it started, my caregiver mindset which still persists to this day....Reactions0reactionsComments2 comments
Overuse of Steroid Infusions/ER Visits?...Hello, I am new to being a caregiver and new to MS. My boyfriend of almost 2 years was diagnosed with MS 4 years ago....Reactions0reactionsComments1 repliesCaregiving
My Multiple Sclerosis and I Agree to Disagree...to me that I found a team of doctors and staff that understood the impact of a chronic disease on the mental health of those affected, be it patient, Reactions0reactionsComments2 repliesCoping
The weather here at Club MS...It hit me that my experience as my wife's caregiver would lead me to describe her experience with MS in a similar way. And many (most!)...Reactions0reactionsComments1 repliesCaregiving
I Miss Me...We make the best of it, and still manage to have a good time, but our husband-wife relationship now must make room for a patient-caregiver dynamic as well...Reactions0reactionsComments12 comments
Undiagnised for 11 yrs. now PPMS!...I am very greatful for my caregiver as i’ve almost fallen many times! I hate this disease, we still dn’t get along!...Reactions0reactionsComments3 repliesCoping
The Power of Words...For those of us lucky enough to be blessed with a big-hearted caregiver, we have learned to smile through our pain for their sake. We see them....Reactions0reactionsComments7 comments
Tough Decisions...So my wife stayed with us for a week to train her mother on the new caregiver tasks....Reactions0reactionsComments6 comments
