I suppose you can add me to the long list of folks who think they may have MS. It’s a big maybe, but here’s my story.
I’m a 27 year old female-to-male individual. Five years ago I was hit with a debilitating treatment-resistant depression and severe fatigue out of the blue. I was sleeping 36 hours at a time. I also began to have sharp headaches in one spot on the front right, and this continued daily.
Eventually I had an MRI and was diagnosed with what they thought was a 1.5 cm telangiectasia/vascular lesion in that spot.
The depression has continued. I failed 20 drugs and had TMS, ECT, and ketamine.
6 months ago I began having intermittent numbness in my left chin, just below my lower lip. I wrote this off as psychosomatic, but it has become almost constant now.
I also began to experience some numbness in my left pec area and down my left arm into my pinky and ring finger.
Today I’ve had a mild squeezing tightness all around my upper chest.
The chin numbness is what I’m most curious about, because my lesion is nowhere near the motor or sensory areas of the brain, and is not thought to be a cause of any symptoms.
I will meet with a neurologist to re-scan the brain lesion. But I wonder if anyone’s MS lesions were initially diagnosed as vascular.