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Confused

  • By Jeanette Huynh Keymaster

    From one of our community members:

    I have had MS FOR 4 YRS THAT I KNOW OF. MY DR. THAT DX. ME SAID I HAD, CARRIED IT FOR ABOUT 5 YRS. SO HERE WE GO WITH 9. I HAVE HAD THE MINOR PROBLEMS , BUT LOST MY HUSBAND, AND I HAVE NOT GIVEN IN. THE NIGHT THE DR. CALLED I LOST MY DADDY 2 HOURS LATER. I HAD A 4 MONTH BAD PERIOD OF MD. IT IS RRMS. NOW , I AM ON AVONEX FOR A MONTH WAS ON TAZINIDINE, BACLOFEN, GABAPENTIN, ATIVAN MIRIPEX AND RESTORIL, I WAS ON 3200 MG OF GAB. A DAY AND I TOOK MYSELF DOWN TO 1200 BECAUSE OF THE MEMORY LOSS. ALL OF A SUDDEN MY WBC IS @ 2:00,NOW I AM HAVING SEVERE LEG PAIN IN MY CALVES, AND YOU CAN SEE MY L. LEG TWICTCHING.
    WHAT DO YOU THINK ? AND WHAT DO YOU THINK ON WHY PEOPLE DON’T WANT TO BE WITH YOU IF YOU HAVE A DISEASE? I AM SO ACTIVE AND A DANCE TEACHER OF BALLET. I LIVE ALONE NOW AND I AM VERY ACTIVE .
    MY 2 QUESTIONS. 1. WHY ARE MY LEGS HURTING SO BAD AND AM I GOING TO BE ALONE FOREVER ?

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  • By PamsaRN

    Hopefully, one day you will find the person meant for you. I remember being 18 or 19 and having periods of extreme exhaustion. I didn’t know what was wrong and being so young I didn’t mention it anyone. I married a wonderful man and after the birth of our first child I felt like I had been run over by a train. I hurt all over. The Dr.s thought it was Lupus and then fibromyalgia. My second baby brought on another flare. I fell down the stairs. It took ten years for someone to suggest a MRI and Spinal Tap. Both confirmed a diagnosis of MS. For years my bladder didn’t work right and now we had a answer to all symptoms.Stress from life will bring on a flare. I have a great neuro, urilogist and pain management doctors taking care of me now. Communication is very important. If your having pain and twitching there are meds to help. I have been married for 27 yrs to my wonderful husband. He is an amazing father and care giver. When you find your true love you can’t imagine anything separating you except death. Good times and bad have been ours to share. When you find the right person nothing will keep you apart. Good Luck!

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  • By Katie

    You have nerves in your legs so it could definitely be your ms. I’m still on a lot of the medications you listed and I’m not sure if it’s from the meds or the ms that cause all of my problems, but I do have quite a few. I suggest seeing your doctor that’s definitely not normal, they might just give you psychical therapy and that would probably be good for you. I go to p/t for neck and back spasms it works great.
    As for your other question, you don’t want to be with someone who can’t respect your disease, your happiness comes first. One day your find someone who completely over looks your ms and that’s the person you want because on your bad days, that’s the person who will stay by your side.

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