This really steams me. I’ve been struggling with this horrid disease since 1996, finally diagnosed in 2003, and have been repeatedly told that one of the most common symptoms is fatigue. Yet any of the drugs available to help with this very serious symptom is not approved for MS. In fact there are none approved. Even if one helps you, insurance won’t pay for it and even if your doctor protests, they still won’t pay for the drugs. That means not one is available for MS.
That means more problems, forget about working, trying to keep up with your own life, or keeping a sunny hopeful attitude, when you are exhausted, all seems bleak, and I dare one more perky health professional to tell me to exercise to overcome it!
What troubles me is why haven’t we demanded approval of these drugs so insurance will cover them? God knows we are tapped out paying for drugs that might or might not delay more of our eminent disability. Saddled with tests and physical therapy and therapy of all sorts when a lot could just be helped by having the energy for living. Is anyone listening?
Because I don’t have the energy or will to repeat myself.