38 Years and something rare
Hi all MS warriors! I have had MS for 38 years now and I was diagnosed in December with Achalasia, due to MS and uveitis (also from MS). I had never even heard of this new disease, achalasia. Which is rare. Ex my neurologist has been an ms specialist for over 30 years and has only had 2 patients with Achalasia before me and now I'm his 3rd
Hi,
!
I am sorry you are dealing with a new, life changing diagnosis. As if living with MS and uveitis wasn't enough of a challenge! Whew! Achalasia *is* quite rare, as you well know. I am glad your doctor has at least a little experience with this condition and I hope that experience helps you find the best treatment options for you. I know there's only so much you can do, since the condition is progressive. But, I know there are ways to prevent malnutrition and maintain a decent quality of life.
I do hope you are able to find a path forward with this new diagnosis and keep on going as you have already been doing for 38 years. While you shouldn't have to deal with another diagnosis, I suspect that if anyone can handle it, you can.
And, I know this makes for a very clunky segue, but can I just say I love the pic you included? I am a sucker for community member's pet pics!
Best, Erin, Team Member.
Hi Erin,
Thank you so very much for all of you support, knowledge and accolades.. I very very much appreciate it. I have always been involved in my health, even before MS..... working out for 44 years now, 99% of the time, 7 days. I always ate clean and healthy, before MS. Never smoked, did drugs, or big alcohol drinker(not). I have been educating myself about achalasia for the past 5 months.
I thank you again for reaching out to me... very supportive 😘
Lisa
