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38 Years and something rare

Hi all MS warriors! I have had MS for 38 years now and I was diagnosed in December with Achalasia, due to MS and uveitis (also from MS). I had never even heard of this new disease, achalasia. Which is rare. Ex my neurologist has been an ms specialist for over 30 years and has only had 2 patients with Achalasia before me and now I'm his 3rdMy girl and I

  1. Hi, !

    I am sorry you are dealing with a new, life changing diagnosis. As if living with MS and uveitis wasn't enough of a challenge! Whew! Achalasia *is* quite rare, as you well know. I am glad your doctor has at least a little experience with this condition and I hope that experience helps you find the best treatment options for you. I know there's only so much you can do, since the condition is progressive. But, I know there are ways to prevent malnutrition and maintain a decent quality of life.

    I do hope you are able to find a path forward with this new diagnosis and keep on going as you have already been doing for 38 years. While you shouldn't have to deal with another diagnosis, I suspect that if anyone can handle it, you can.

    And, I know this makes for a very clunky segue, but can I just say I love the pic you included? I am a sucker for community member's pet pics!

    Best, Erin, Team Member.

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