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Chronic Kidney disease and Kidney Stones

At the age of 32 I was diagnosed with Chronic kidney disease after a 16mm stone was discovered. First was lithotripsy, to break it up, the stint to help it pass which all lead to scar tissue that makes my bladder smaller than most.
This is the condition I believed lead to my bladder incontinence, well, thats what they told me.
At age 46 I was diagnosed with MS. Now my neurologist keeps reminding me that I have urinary incontinence because of my MS. Hmmmmm?!?
Has anyone else had this issue?

  1. Wow! Your story is really interesting, @MommaMia520! I am so sorry you had to deal with painful kidney stones and chronic kidney disease. I don't think most people really understand how painful bladder and kidney issues can truly be!

    I hope you get some feedback from other community members, as your experience with prior kidney/bladder issues is a new one for me. I would be interested to see if there is any correlation or if this is just a fluke of bad luck!

    Thank you for sharing!

    Best, Erin, MultipleSclerosis.net Team member.

    1. I have been told after a ct scan that I have bladder and at least one kidney stone. I have had bladder stones at least twice before but had not been told I have a kidney stone, I try to drink 80 or more ounces per day. I am taking Potassium citrate with meals for bladder stones. Any recommendations for Kidney stones?

      1. Hi @stuckey17! First off, I am sorry you are dealing with both kidney and bladder stones. I know they can be very painful! If you haven't done so already, you might want to discuss possible treatment/prevention options with your physician, to be safe. Here's one of our contributor's experience with kidney stones -- https://multiplesclerosis.net/living-with-ms/everybody-must-get-stoned/ and -- https://multiplesclerosis.net/living-with-ms/stoned-saga-continued/. And you might find this information helpful in regards to how to deal with kidney stones -- https://multiplesclerosis.net/living-with-ms/eat-link-ms-gut/. And here's some helpful tips from the Mayo clinic -- https://www.mayoclinic.org/diseases-conditions/kidney-stones/diagnosis-treatment/drc-20355759. I hope I haven't overwhelmed you with information! And I hope you get some relief soon! It sounds like you are doing what you can to pass these stones and potentially avoid more! Best, Erin, MultipleSclerosis.net Team Member.

    2. Thank you. I rarely feel pain. I can cut potatoes in half and drink a glass of milk.

      1. thank you for the links.

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