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Dealing with optic neuritis?!

Need suggestions on getting an eye doctor to accept and understand my right eye blurriness is caused by my persistent optic neuritis (courtesy of my MS). Even putting it in bold letters on info form fails.

  1. Going through chemotherapy on top of MS. It’s all up hill and exhausting. I just went through a blurred vision in my right eye. My eye doctor is the best and knew what to do. The blurry vision is one of the side effects of chemotherapy.

    1. So sorry you’re going through chemo. I’ve never but the blurry vision in my right eye is what led yo my MS diagnosis back in 1990. Ever since most optometrists refuse to accept my optic neuritis as the reason and simply correct my left eye’s vision so i can keep renewing my driver’s license. If i can’t legally drive, my life ir royally messed up. Need suggestion on kind of eye doctor to see to get correctly treated. An ophthalmologist doesn’t do eyeglass or contact lens prescription. Hoped someone on here might have gone through something similar to my situation. Thanks for taking the time to respond & best of luck in your treatments.

  2. Hmmmm, . I'm not sure I have any helpful suggestions. Does he just forget your MS related optic neuritis or does he assume it's caused by something else? I don't understand why he wouldn't accept your diagnosis. That seems . . . odd to me.

    Best, Erin, Team member.

    1. Last 2 optometrists totally ignored that i had MS(as definitively noted on intact form). Both kept insisting the blurriness in my right eye had to be a cataract. Apparently, my failure to get a written note from my neurologist (back in 1990 when my MS diagnosis was made) now relieves any optometrist of accepting my word that I suffer with/from optic neuritis in my right eye. At this point, the original neurologist is probably dead and I can’t afford to be retested by a new one as I currently live on Social Security only & without health insurance.

      1. , good grief! Two optometrists ignored your MS diagnosis? Sheesh! Are you able to access your medical records, so you can show your diagnosis of optic neuritis? I feel like there has to be some way to prove your diagnosis, but I also am aware of how cumbersome and onerous the world of medical records and insurance can be!

        Best, Erin, Team member.

    2. Erin,
      Unfortunately, my initial diagnosis was in January 1990 and those records are long gone. Unless i get another exam and diagnosis, neither of which i can afford, it is dimply my word that i have MS with accompanying optic neuritis. Hope to get seen by a new ophthalmologist as I moved 15 years ago from the area where my original one wss located, though suspect she’s passed on by now. Not easy being 75, retired, living in a tight budget, with no health insurance.

      1. , I'm sorry. And back in 1990, most medical records were still on paper, so I highly doubt those records were transferred to the digital realm, either. That really stinks. 🙁 . A good ophthalmologist can often spot MS related vision issues. In fact, some of our members have received a suspected diagnosis from their eye specialists (ie, they'll go to the eye doctor, the doctor will see something and say, "Hey, this doesn't look right. I think you need to see a neurologist. This might be MS."😉.

        And you're right -- getting older in this world is not for the faint of heart!

        Best, Erin, Team Member.

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