Three years ago I started getting some strange symptoms. The first symptoms I experienced were dizziness, bladder urgency and incontinence and headaches in my left temple area that would occasionally cause numbness and tingling in that side of my face.
Several more lesions revealed
At that time I was referred to a neurologist and had an MRI of my brain. The MRI showed a lesion and my neurologist told me it was typical in with what they see in people with MS, so she ordered an MRI of my c-spine and t-spine. Those came back negative. She told me at that time to follow up in a year. The following year I had another MRI of my brain and they found several more lesions on my brain. I was told by my neurologist at the time that they had used a more powerful MRI machine this time so she was unsure if they had been there during the first MRI or if they were new.
Awaiting a follow-up MRI
I left her office frustrated and without answers and still experiencing symptoms. I’m scheduled for my follow-up MRI for my brain and t-spine next Thursday but I’ve had to cancel it twice now because I’m currently dealing with vertigo and I cannot lay on my back. I’m hoping by next week I’ll be able to go through with it.
I’m currently experiencing the following symptoms: dizziness and vertigo, bladder incontinence (had bowel incontinence during my last “flare up”), fatigue (needing to lay down after simple tasks, showering, cooking, cleaning, grocery shopping), headache in both temple areas, joint pain, pain in upper back and chest like a tight squeezing pain, vibration sensation in my chest, muscle spasms and cramps in legs, muscle stiffness, blurry vision (often see straight lines as blurry during flair ups) pain in eyes. I see flashing lights when I close my eyes sometimes. I get pain behind my eyes. Sometimes the “world” appears to be moving even when I’m perfectly still. Sometimes looking at walls they appear to move. Heat intolerance and word finding difficulties with specific words relating to an object (will say the wrong word for the object repetitively until the right word comes out). Feeling like my body is buzzing, spasms in feet, pain in left hamstring with spasm/twitching.
I’m sorry this is so long but I’m wondering if anyone else has experienced similar symptoms. I’m also wondering how long it took to get a diagnosis? I’m so tired of feeling this way and not having any answers. It gets depressing and is so hard to explain to others how I’m feeling because they don’t understand. I don’t have a diagnosis so they don’t get it.