February 12, 2013
Share your experience with emerging treatments and therapies in MS. Get the conversation started.
September 18, 2014
I read a very interesting and encouraging article in the latest (Aug/Sept 2014) issue of Neurology Now magazine that discussed some great results in using statin drugs (specifically Zocor) in reducing brain atrophy in people with progressive forms of MS. Has anyone else seen anything about this? I know this is early research, but it could help lead to better treatments for SPMS and PPMS.
December 9, 2014
ATL1102 for MS
ANP (Antisense Therapeutics ltd) is currently investigating provision of ATL1102 under an Early Access Program (EAP) on
compassionate use or on a named patient basis in markets where the drug would qualify for use on
these grounds including those where the Company can charge for drug access resulting in a possible
early income stream. These investigations are moving forward positively with the Company having
identified a potential existing source of ATL1102 material for use in an EAP. Assuming all the material
will be available and suitable for use (to be confirmed in ongoing technical diligence and business
follow up) ANP estimates there would be sufficient quantities for one year’s treatment for
approximately 200 patients1.
ANP is in discussions with an experienced European based group to set up and run the program in
Europe for ANP. Pricing for such EAP access for patients to use ATL1102 would be determined with
the insight of the European firm, however as a point of reference the hospital price of TysabriTM in
Europe ranges from A$25-$33,000 per patient per annum2. ANP expects to update the market on the
progress of this use of ATL1102 in the coming months as key components are confirmed.
As outlined earlier, ANP’s plans are to conduct a Phase IIb trial of ATL1102 with a funding and
development partner. The Company is currently engaged in the process to attract a partner.
April 27, 2016
WHY AREN"T PEOPLE TALKING ABOUT HSCT???????
My brother lived with MS for 11 years and for the last 2 years he has been researching HSCT (Hematopoietic stem cell transplantation) which is the transplantation of multipotent hematopoietic stem cells, usually derived from bone marrow, peripheral blood, or umbilical cord blood. This procedure is not approved in the U.S. although it has been researched and tested since the 1990's, because the big pharmaceutical companies don't want it approved! They will lose BILLIONS of dollars a year from MS patients not needing medication ever again. HSCT has a 86-91% success rate-- not putting MS in remission but ERADICATING it completely!! My brother had to travel to Mexico for the procedure (it is also performed in Russia and Thailand) and costs about $85,000. Yes that is a lot of money to come up with and insurance companies aren't going to help pay for it, but it is definitely worth it to be MS free for the rest of your life. My brother was unable to drive and could not walk without a can and a month after the procedure, he is walking without a cane! Definitely do some research about HSCT!
March 24, 2017
I was actually going to have an autologous stem cell transplant at StenGenX in San Diego CA....issue is the $15,000 price tag....while that covers everything but your plane trip, it's too spendy for my pocketbook. In this form of transplant they take the dormant stem cells from your fat, they take millions of cells, they take them from fat because they are dormant and have not been exposed to MS. They separate the stem cells from the fat and the plasma (holding onto the plasma) clean off the stem cells then activate them using there drugs and yoyr plasma. They then will introduce the srem cells 4 ways into your body. 1) Into you vein through plasma, 2) thay give you a vasal dialator, and make a nasal spray and you use the spray to inhale and the stem cells will make it through the blood brain barrier through the dialation of your arteries in your nose, 3) you will get a spunsl injection around your S1 area and )4 you will get a bladder washing of cells to help with the damage done to your bladder. This is a 2 day orocedure, they put you up in the hotel across the street so it's easy to monitor you, and at the end of the second day you can go home.....I tried a go fund me to get the money to help fund this but no ho from the thousands of people across the country throygh the chirch.