Frustrated and scared
Hi, I hope it’s okay to post here. I know it’s a board those that have been diagnosed. I sat on the tile floor for weeks working on signs for my daughter’s sport. Not a good idea. At the end of it, the top of my foot and ankle were numb. I waiting a couple of weeks to see if it would wake up. It didn’t. We were going on vacation, so l made an appointment with my Internist for the following Monday. More symptoms happened while I was on vacation. Right side feeling numb and tingly. On the flight home, my face starting feeling numb. I was so freaked out I had my husband take me straight to the ER. I had a CAT scan. No stroke, no tumor. They told me they do not diagnose, just treat emergencies. They gave me the name of a Neurologist. I went to the Internist and he didn’t know what was happening with me. They drew blood and said I needed to go the Neurologist. They have the blood test back and the doctor was suppose to sign off on the referral. No one will call me back. They are off today. UTSW will not make my appointment without the referral. My symptoms are still there. The numbness has moved around. I’m frustrated and scared. I think my husband is tired of me crying. Sorry for the long post...
Hi @LeaLea70. You are most definitely welcome here. We have lots of members who are in the midst of the diagnostic process or who suspect they have MS. Your fear is understandable, but the best thing you can do now is to throw everything you know about MS out the window. If you do have MS, know that the MS journey is different for everyone. This might be the worst you will feel ever. There are also medications available that can slow the progression, preventing new lesions from forming for long periods of time. It also also still possible that your symptoms are caused by something else. Here is an article with a list of health conditions that mimic MS: https://multiplesclerosis.net/diagnosis/ruling-out-other-health-conditions. Some of these conditions are easily managed or cured. I hope you get answers and relief soon. Here is an article about the diagnostic process that can give you and idea of what you can expect from the neurologist: https://multiplesclerosis.net/diagnosis. I hope this helps and that you get answers and relief soon. Keep us posted if you are comfortable doing so. Best wishes! - Lori (Team Member)
Thank you for the encouragement. It makes me feel like I’m not alone. I will look at the link.
, just to piggyback on what wrote, you are always welcome here! And I am so sorry you are hurting and that it's taking some time to get in to see a neurologist. I hope you get that referral ASAP and that you can get an appointment with the neurologist quickly. And feel free to come here anytime you need to vent. That's what we're here for! Best, Erin, MultipleSclerosis.net Team Member.
