fantastic advice and links, thank you!
It's never a bad idea to plan for the worst. Doesn't mean the worst will happen, and if that is the case, then that's great! But if the worst does happen, having some input over that eventuality can be its own kind of empowerment.
Not the same, but similar: I just moved to the house I will grow old in (they're calling it "aging in place," which suggests the goal is to live out one's life in a space that's not a facility).
The new place has no stairs, plenty of wide spaces for getting around, a tall raised-bed garden that can be maneuvered by a wheelchair (thanks to my crafty husband who built it), and areas in the bathrooms that can quickly be adapted if necessary.
Just being cognizant of what could happen and preparing for it has made me far less anxious about my future even if MS is squarely inside it. So too can preparing for certain financial eventualities give us agency over MS in a way that can let us sleep a little bit better at night.
Tamara, MultipleSclerosis.net community advocate