I'm 57 and have had "mild" symptoms for several years. I am fully mobile. I don't know what the criteria are for using this. Anyway, I have recently finished by second bag of the first infusion dose (11/1/21). Other than the initial fatigue from the benadryl and steroids, I have felt very similar to the weeks leading up to the infusion. I may not be the best source of info here due to the early stages of treatment though. My wife says that she is not noticing any additional declines that I had been experiencing in the months leading up to the infusion. I can't see much change but I did not have any noticeable side effects. I still pay the tax for over doing it and I continue to have the other symptoms prior to treatment. It was explained to me that it should slow or (hopefully) halt the progression. I would be happy with slowing it. It is very expensive but covered by my insurance and highly recommended by my Neurologist who I have a lot of faith in so I am going this route. If I notice anything I will post to this site somewhere.
Erin Rush Admin
, I am glad you took the time to share this information! I feel that having more community member experiences to draw from is always a good idea. I hope Ocrevus is a great fit for you and yes, please do update us, if you feel comfortable doing so.
Ocrevus RUINED my LIFE for over a YEAR... IT WAS HORRIBLE!
FUCK THAT MEDICINE, stick to what works, or the old tried and true!
Shitty shitty drug..
Erin Rush Admin
, I am sorry Ocrevus was not a good fit for you. I know some meds really just do not work well for some individuals. I hope you are on a treatment that works well for you, with less severe side effects.
I'm 63 will be 64 in a few months. From what I was told it's our age. Something to do with..it works best on the younger who still have mild symptoms. Have I been misinformed? I would love to hear from anyone in their 60's and are on Ocrevus.