Ocrevus

Hi, ! I am sorry your neurologist has decided Ocrevus is not a good fit for you. Did he/she expand on their reasons as to why this might not work for you?


There are a few different medications you can look in to for managing your MS symptoms. And, Ocrevus works well for some individuals but others have found it not to be a good fit. Check out this list for some possible ideas for treatments to try -- https://multiplesclerosis.net/treatment/managing-the-disease-progression.


I do hope community members with experience with Ocrevus see your question and chime in here. Like I said before, some members have found it totally worth the potential side effects -- https://multiplesclerosis.net/stories/ocrevus, while others have found it to no be effective in managing their MS symptoms -- https://multiplesclerosis.net/stories/treatment-experience.


I hope this information is helpful for you and keep in mind that ultimately, you get to decide what treatment plan to try -- after all, it's your body!


Best, Erin, MultipleSclerosis.net Team Member.

I'm 57 and have had "mild" symptoms for several years. I am fully mobile. I don't know what the criteria are for using this. Anyway, I have recently finished by second bag of the first infusion dose (11/1/21). Other than the initial fatigue from the benadryl and steroids, I have felt very similar to the weeks leading up to the infusion. I may not be the best source of info here due to the early stages of treatment though. My wife says that she is not noticing any additional declines that I had been experiencing in the months leading up to the infusion. I can't see much change but I did not have any noticeable side effects. I still pay the tax for over doing it and I continue to have the other symptoms prior to treatment. It was explained to me that it should slow or (hopefully) halt the progression. I would be happy with slowing it. It is very expensive but covered by my insurance and highly recommended by my Neurologist who I have a lot of faith in so I am going this route. If I notice anything I will post to this site somewhere.

Be Grateful they don't want you to take it!!!


Ocrevus RUINED my LIFE for over a YEAR... IT WAS HORRIBLE!


FUCK THAT MEDICINE, stick to what works, or the old tried and true!


Shitty shitty drug..

I'm 63 will be 64 in a few months. From what I was told it's our age. Something to do with..it works best on the younger who still have mild symptoms. Have I been misinformed? I would love to hear from anyone in their 60's and are on Ocrevus.