Numbness and Tingling When Sitting Down
So I've been having this problem for about a month now. Whenever I sit down, my arms and hands get extremely tingly and it gets very difficult to breathe. I went to my neurologist about 3 weeks ago and they found an enhancing lesion in my spine, to which they treated with 3 days of steroids. The issue got better for a little while, but has resurfaced again. I'm also on Tysabri, which I'm not liking too much right now as it makes me feel awful during the infusion and seems to not be working as well as I had hoped. Has anyone else had problems with tingling when you are sitting down? Is there anything that helps?
Hi veronicar10! I am sorry you are experiencing these issues. You should let your neurologist know that your issues have returned, as you may require further treatment. Breathing problems are a potentially serious problem and I would definitely stress to your doctor that this is one of the symptoms you are experiencing. Here is some information on the breathing issues people with MS may face -- https://multiplesclerosis.net/symptoms/breathing-problems/. Here is a pretty detailed personal essay on one person's experience with Tysabri -- https://multiplesclerosis.net/living-with-ms/tysabri-decisions-considerations/. If Tysabri is not working well for you, though, you should let your neurologist know. Again, I really suggest talking to your physician, especially about the breathing issue. It could be a sign of many things and it would be best to find an effective treatment to manage that symptom, as well as the tingling. Please let us know how you are doing, if you feel comfortable doing so. Thanks for reaching out. We're glad you're here! Best, Erin, MultipleSclerosis.net Team Member.
Thank you so much for your reply Erin! I am scheduled for another Tysabri infusion tomorrow and will definitely talk to my physician about the reoccurring issues I've been having. I am so happy I found this website as I am FINALLY reading some stories about people's health that I can actually relate to!
So I had an allergic reaction to the medicine and am looking for other options right now. Scary day, but made it through!
Oh no, Veronicar10! We appreciate you following up with us about your Tysabri infusion. We're so sorry to hear that you had an allergic reaction!! Glad that your doctor/nurses were with you at all times to help during this situation. Hoping that you and your health team can decide on what's best for you!
Best - Meagan, MultipleSclerosis.net Team Member
I was officially diagnosed in 1985.
I was able to hide it. Stopped telling women because they always left skid marks.
Until I met my Wife who when I told her. I had hid it because of past women. When I told her her reply was "That's It?"
Because I kept hemming & Hawing. She Said "I thought you were going to say you had Aids."
Well it was her response that was the time I said "Thus is someone I can spend the rest of my life with.
(It's our 20th Wedding Anniversary this year. Went spent it going to Spain. We have been to 7 States, 8 Countries.
Sadly we have lost 5 Digs too (That hurts deep in my heart!!
My girls helped me through alitbic sad times. They were there to make me feel better!!!!
I am just hoping my Wife will let us get another Heartbreak!, I love that you found the right partner for you and that you made a beautiful life together. Congratulations on 20 years!
I am sorry for the loss of your dogs. As an animal lover myself, I know how deep the grief can cut.
May you have another happy twenty years together (and MORE!) and maybe another dog, too 😉 .
Best, Erin, MultipleSclerosis.net Team member.
