Tingling Right knee
Hello all, I was DX with RRMS in February 2012 and thus far I have had minimal issues. I mean all my lesions on my left side so my right side has always been affected. I am curious if anyone has had this happen to them. Friday Aug 1 2025 I went with my husband and 16 year old son to a concert. We stood the whole time but that didn’t seem to be an issue. But when I was getting out of our vehicle when we got home my right knee felt like it was a sleep like your feet tend to do if you sit on them and when you stand up there are pins and needles that is how my right knee is. I just left my MS neurologist office and she was baffled at this as well. So I am asking if anyone has ever had a body part do this? Thank you in advance. Amber
Hi,
(Amber)!
First off, I hope you had a great time at the concert, despite the after effects you experienced from standing that long. So, unusual feelings like pins and needles, stinging, itching, and the like is often lumped under the term dysesthesia. You can read a bit about it here (along with other kinds of MS pain) -- https://multiplesclerosis.net/living-with-ms/types-pain-symptoms. And here's a conversation from our forums on the topic of tingling knees and legs -- https://multiplesclerosis.net/forums/tingling-buzzing. I would say that you can follow up with your general practitioner or keep your MS doctor abreast of any changes. While the knee sensation could be related to your MS, it could also just be a one time thing or related to something else altogether. So, you can keep an eye on it, note if it happens again, and have your doctors keep an eye on it. I am 49 and though I am pretty healthy, I will say that my legs aren't fond of hours of standing anymore and let me know the next day, but it's a passing pain/swelling. Some things may be related to our age or again, other issues (my blood circulation could be better). I think it's smart that you are aware of what happened and talked to your MS doctor about it. Did you have any other symptoms, like swelling, severe pain, stiffness, numbness, etc? Are you still experiencing the sensations? You don't have to answer these questions here if you don't want to, but they would be good to note for your own records.
I do hope this was just a passing thing and your body just telling you, "Our days of standing through that encore of Freebird after two hours of standing in a full crowd may be behind us, Amber" and not an MS issue!
Best, Erin, Team Member.
