March 10, 2020
Hi all, up until a few hours ago I didn't even know what MS was until my boyfriend of 1 year got diagnosed suddenly. We’re both in bits, but I absolutely love this man, and I’ve said that I want to be with him every step of the way no matter how hard it is. What should I expect, and what should I know? Any advice at all is appreciated, I want to know anything and everything I possibly can! It's an awful lot to take in, and I can't stop panicking!
March 11, 2020
I am going to provide some links for you with information that hopefully can help with any questions both of you are sure to have!
First of all please know that neither of you are alone in this and we are so glad you reached out to this community.
Unfortunately, a new diagnosis for both the patient and caregiver can be both scary and confusing. Arm yourselves with as much knowledge and information as you can, AND
never be shy in contacting your health care provider(s) with concerns or questions you might have!
A LOT of information I know, but try to digest things slowly and look through them at a comfortable pace for yourselves, and as I mentioned, it's so important to have a doctor who is knowledgeable in m.s. and can walk with you both through the uncertainties.
Know that we're standing with you and are here if you have further questions, comments, or ever have a day that you just need to vent!
Please keep us posted, thinking of you! Janus
March 18, 2020
Fear of the unknown is among the first reactions to an MS diagnosis. Know that the fear will subside after you live with the disease for a while. It takes a lifetime to learn all the tools that help us cope with each passing day, month, and year.
There's oodles of information on the internet about the disease and its treatments. Just as important (and maybe most important) is symptom management. From medications to physical therapy and home exercise, you can learn about them from your doctors, online MS communities, and MS organizations' webpages.
While it's healthy to self-isolate during these times with COVID-19, self-isolation due to a chronic illness like MS is the worst thing we can do.
So please reach out to us about anything at all! We care and we're here to help. Best, Kim moderator
April 15, 2020
What a thoughtful girlfriend you are! There are not too many people who would hang in there after a loved one is diagnosed. I know from personal experience. My own family doesn't
want to talk about M/S. I keep everything to myself when I am around my family. So I say to you "give yourself a HUGE pat on the back" for being a wonderful human-being!
April 20, 2020