Vaccinated and ImmunosuppressedAfter more than one year of actual time passing and what seemed like a couple more years, I was eligible for the COVID-19 vaccine. I received the newsletter from the...Reactions0reactionsComments12 comments
The Risk for Migraines When You Have Multiple SclerosisMore and worsening headaches were hard to ignore early into my new multiple sclerosis (MS) diagnosis. I wondered whether I’d just imagined them, to be honest. I was stuck in...Reactions0reactionsComments38 comments
MS Comic: Asking For HelpIt's not always easy to ask for help when you're living with MS. But sometimes everyday tasks like buttoning shirts and removing lids, become a little too difficult to do...Reactions0reactionsComments0 comments
Sparky Jaw: Researching Trigeminal NeuralgiaI always called it 'sparky jaw.' Since I was a child I would have this incredible pain along my jaw. It felt like an electric cactus was stabbing my face...Reactions0reactionsComments24 comments
What It’s Like to Be a Friend to Someone With MSMultiple sclerosis (MS) can create roadblocks in friendship. The uncertainty of what to say or how to support your friend can be challenging. Though MS has made a significant impact...Reactions0reactionsComments27 comments
MS Comic: Sexy TimeThe realities of intimacy when you have MS may not be what romantic films are made of, but that doesn't mean it can't be special. Sex may require patience, adaptability...Reactions0reactionsComments6 comments
The Truth About Suprapubic CathetersWarning: this is a story about a man and his pee. I've done everything possible to avoid a suprapubic catheter (SPC). To me, it meant "a freaking tube coming out...Reactions0reactionsComments48 comments
But You Did It Before...If you live with MS, how many times have you heard something like this: “But you were fine yesterday!” or “You didn’t have any problems doing it in the past!”...Reactions0reactionsComments15 comments
Deconstructing Disability Measures in People With MS: The EDSSFor many, the chief concern following an MS diagnosis is the likelihood that the disease will lead to disability. Disability is a broad term, however. Losing the ability to walk...Reactions0reactionsComments15 comments
Know the Signs of Burnout in CaregiversIt is completely understandable if my wife, or any MS patient, gets caught up in what is happening to her and forgets about my needs as a caregiver. But MS...Reactions0reactionsComments3 comments
The Problem With Saying “I Never Let My Illness Stop Me”This past week, I saw a widely shared tweet by someone talking about how harmful it can be when someone loudly and proudly proclaims that their illness or disability never...Reactions0reactionsComments67 comments
MS Comic: Working From HomeDealing with MS fatigue and muscle weakness is still an issue, even when working from home. We get by with a little help from our loved ones, pets, and devices...Reactions0reactionsComments5 comments
World MS Day: Managing MS in Different ClimatesMay 30, 2021, marks World MS day. This day represents unity, awareness, and support in the global MS community. MultipleSclerosis.net is proud to support the MS community on this day...Reactions0reactionsComments0 comments
It's Okay to Have Fun!When you live with a chronic illness, as I do, the idea of doing something fun can become complicated. Don’t I need to be strict and focus on my health?...Reactions0reactionsComments8 comments
Insomnia and Fatigue, a Dueling Battle"You sleep like a vampire; we have to reset your sleep schedule!" My husband says this to me all the time. Most nights (well, mornings), I am now going to...Reactions0reactionsComments5 comments
Have Gait Problems? New MS Device “Talks the Walk”Walking isn’t always a problem for me (though talking might be!). But when I do get tired, my legs feel very much like they’re made of cement, making it hard...Reactions0reactionsComments39 comments
Virtual Improving Lives Benefit from MSAA Brought the MS Community Together at Home for a Good CauseFinding unique ways to connect with others over the past year has been difficult. The COVID-19 pandemic influenced many organizations to get creative when keeping in touch with their supporters...Reactions0reactionsComments1 comments
MS Comic: Art SchoolThose living with MS are no strangers to setbacks and new challenges. But perseverance and a change in perspective can make a world of difference when facing difficult and frustrating...Reactions0reactionsComments0 comments
Does Having MS Mean You Identify As Disabled?In early April, I attended a virtual writers’ conference and was immediately drawn to a group of workshops that prioritized the voices, ideas, and practices of writers with some sort...Reactions0reactionsComments41 comments
Reasons to Date Someone With a Chronic IllnessDating someone with a chronic illness, like MS, is a scary proposition to most people. Fear of the unknown, concern over declining health, fear over their abilities, etc. The list...Reactions0reactionsComments23 comments