Volunteering for MS Research: Finding OpportunitiesAfter I got over the shock of my multiple sclerosis diagnosis, one of the first things I wanted to do was volunteer. Giving back felt like a necessity and not...Reactions0reactionsComments5 comments
Things I Hate to Hear with MSIf you follow enough websites that discuss chronic illness, you are bound to come across some lists that detail what folks should or shouldn’t say to those with a particular...Reactions0reactionsComments39 comments
Playing the Cards You Were DealtEveryone in life is born into a different set of circumstances. Some people are born into a life of poverty, and others are born with a silver spoon in their...Reactions0reactionsComments11 comments
MS, You're WeirdDescribing MS to someone who doesn't have the disease is a feat. Explaining the pathology is usually a non-starter, and using metaphors can become imprecise and confusing. When I try...Reactions0reactionsComments17 comments
MS Good News Report: Stem Cells, a New "Ultra-Relay" & MoreResearch news with a positive angle. Researchers recently looked at the behavior of skin cells (from three people with MS and three people without MS) after reverting them to stem...Reactions0reactionsComments2 comments
Beggars Can Be ChoosyYou might know the old term: beggars can’t be choosy. The concept behind that idea is that when you have no power, you have no right to reject what is...Reactions0reactionsComments16 comments
Neglecting Other Health Problems Because of MSAs unfair as it may seem, there are many people who live with a chronic illness, like MS, who also have a host of other issues. Hearing of someone suffering...Reactions0reactionsComments3 comments
MS Comic: There's a Bug on Me!MS can cause so many weird sensations, like phantom vibrations or even feeling like a bug is crawling on your skin or scalp. These creepy-crawly, tickly feelings can be annoying...Reactions0reactionsComments1 comments
Meet Moyna & Learn About Her MS AdvocacyHow did you react when you were first diagnosed with MS? Shock, grief, anger, isolation, and even relief are common emotions. When Moyna was diagnosed less than one year ago...Reactions0reactionsComments2 comments
Be Mindful of Your Mask When You Get Your Next MS MRII went in for my latest MRI “checkup” for MS last September. It was the first time I’d set foot in the city since the end of February, and I...Reactions0reactionsComments4 comments
Resolving Not to ResolutionIt's already the New Year - 2021. As long as I can remember, and I am 50 years old, there was always a big deal about the New Year’s resolution...Reactions0reactionsComments1 comments
MS Comic: New Christmas DecorationsDon’t have the energy to dig out or buy Christmas decorations? Many people have creatively used items lying around the house, but Brooke took it to a new level in...Reactions0reactionsComments4 comments
Happy Different, But Doable HolidaysAs the holidays are quickly embarking upon us, I find myself hovering in unfamiliar territory – not physically, but mentally and emotionally. I am really a lover of holidays (and...Reactions0reactionsComments6 comments
The Start of Something NewI have been on Gilenya since it came out. For me, that has been a little over ten or so years. It has been an excellent medication for me and...Reactions0reactionsComments6 comments
Check Out My MS Manager’s Mini Makeover!Keeping track of your health with the use of a mobile phone app is increasingly popular among members of the MS community. Join the thousands of people already using the...Reactions0reactionsComments0 comments
The Literally Invisible SymptomWhen your skin is dark, you miss out on an important multiple sclerosis symptom. Itchiness caused by a rash is not uncommon. There are many types of rashes with myriad...Reactions0reactionsComments2 comments
Combating Positivity PornLiving with a chronic illness, like multiple sclerosis, can be filled with challenges. Sure, there are the rough symptoms like pain, fatigue, spasticity, and many others to contend with, but...Reactions0reactionsComments24 comments
Bringing My Triplets Home and Restarting My MS TreatmentsThis is Part 3 of a 3-part series about Calie's experience giving birth to her triplets. Part 1 talked about her pregnancy and going into labor. Part 2 discuss the...Reactions0reactionsComments2 comments
How MS Made Me Slow Down for the Holidays...LiterallyIt’s been more than seven years since my diagnosis, but I recall certain details from my first Christmas following that date like they’d happened only yesterday—an unexpected gift from an...Reactions0reactionsComments6 comments
Grief Chronicles - To Say or Not to SayMy beautiful mother recently transitioned. This is the most devastating loss I have endured thus far. I rejoice knowing that she is free from pain and suffering and I will see...Reactions0reactionsComments6 comments