Post it note...I just read a story about fatigue from a gentleman named Devin. If only I could fit that awesome article on a post it note. I would keep one stuck...Reactions0reactionsComments5 comments
Stable Disease Does Not Mean Symptom Free...Recently I was talking to a nurse; not my nurse, but someone who came to the house to help my mother with some new medication. During our conversation, I mentioned...Reactions0reactionsComments10 comments
MS IS NO PAPER TIGER...Ask my daughter or anyone who knows me well and they’ll be certain of one thing I’ve always loved doing. See, I love watching documentaries (courtesy of Netflix of course)...Reactions0reactionsComments2 comments
Faith and Illness...I started feeling ill with what I thought was the flu. The normal flu like symptoms, aching, headache, fever, and just overall ill feeling. What I thought was the flu...Reactions0reactionsComments1 comments
Temperature Sensation issues...Hello, One of my symptoms that I get during a relapse, and am currently having right now, is temperature sensation differences between the back side of my left butt/leg/foot, compared...Reactions0reactionsComments4 repliesSymptoms
The Question "How are you feeling?" And The Mixed Feelings It Can Cause...If there is one question that those with a chronic illness like multiple sclerosis hear a lot, it’s “How are you feeling?” or some variation of it. It may seem...Reactions0reactionsComments61 comments
Giving Thanks...I heard on the news last night the men's football head coach from the University of South Carolina answering a question about how he felt about playing football on Thanksgiving...Reactions0reactionsComments6 comments
The "How are you?" Dilemma...Listen...I love my people. My friends and my family. I love them with all of my heart. I've lost some along the way as we all have and I don't...Reactions0reactionsComments3 comments
overworked......Half a year ago I have told my employer of 6 years, that I have MS. I did this, as my symptoms (mostly my walking) got worse and I had...Reactions0reactionsComments3 repliesWork & Employment
Nearly 17 Years With MS: Some Things I Wish I Knew When I Was Diagnosed...Wow, times sure flies as you get older, doesn’t it? As I write this, I’ve been diagnosed with Multiple Sclerosis for 16 years (actually, closer to 17, my MSiversary is...Reactions0reactionsComments86 comments
Advanced MS involving the brain stem and vagus nerve...The time has come to seek your help with what I believe is taking me down for the last time. Backstory - my first attack was during a record heat...Reactions0reactionsComments5 comments
cold core temperature...When I swim in a cold lake or take a cold bath, my ability to walk vastly improves for an hour or 2. Anyone else experience this? Any research being...Reactions0reactionsComments1 repliesResearch & Clinical Trials
Staying Ahead of the Bully Called MS...One of the biggest goals people living with multiple sclerosis (MS) have is avoiding disease progression. The fewer relapses the better, right? We want to keep moving! We don’t want MS...Reactions0reactionsComments4 comments
Attention Issues and MS - Yes, They're Real!...When it comes to having a primary neurological disease like MS, I feel like overall, I am still pretty intelligent. I’ve always loved problem-solving as well as learning. But over...Reactions0reactionsComments5 comments
Free MS book -- would you read this?...A few months ago my nerologist told me I have epilepsy. The conversation went on. He asked me if I'd heard him. I said I had but I hadn't internalized...Reactions0reactionsComments2 repliesDiagnosis
The Hippo Is Eating Food...Sometime in the early 80's, one of my younger sisters went with our mother to the grocery store. When they returned, said sister had a brand new pack of Bubblicious...Reactions0reactionsComments2 comments
Spasms and Stiffness: Life with MS Spasticity...As I sit down to write this, my train of thought is constantly being interrupted. Not because of brain fog, like you might suspect, but because the muscles in my right...Reactions0reactionsComments179 comments
Body All A-Buzz...Yesterday, my husband and I went for a nice long bike ride. The weather was particularly warm for Autumn and the sky was gorgeously clear. I was compelled to take...Reactions0reactionsComments22 comments
Some Things I Wish People Knew About MS-Related Fatigue...Of the many symptoms that plague those of us with multiple sclerosis, one of the most common is fatigue. It’s such a common symptom that the National Multiple Sclerosis Society...Reactions0reactionsComments203 comments
Shingles (Ouch!)...Has anyone else had shingles? I read there was a study that found taking Tecfidera increased the chances of getting shingles. I was wondering if anyone else has gotten them?...Reactions0reactionsComments5 repliesSymptoms